More bad news

Man it seems like lately I only post depressing stuff. Unfortunatly, here's a little more. Jax had an EEG today. You know the drill, they hook you up, hope you fall asleep, and watch it for about a half hour. Then come unhook you and you go home. Well about 15 minutes in (Jax was wide awake still) a resident came in.
Yeah, thats wierd to see a doctor at an EEG appointment. So he comes in and asks how he's doing, so I tell him, he's kind of both, in some ways he seems better, holding his head up and starting to smile, but I'm also seeing more seizures, and he said the EEG tech called them because she was concerned about his EEG, basically, it looks like crap.
The attending said it looks better than the last one he saw... uh the last one this attending saw was when Jax was in status. So this one d--n well be better than that one. But the resident and the tech were freaking out. They weren't able to pull up his last one to compare. Right now there is no plan, it will be officially read, and my ped will call me and tell me what it "officially" says since she's the one who ordered it.
Then what do we do? I have no idea, since his neuro plainly made it known already that he doesn't know what else to do for his siezures. He said he would see him but what good does that do to see a doctor that doesn't seem to care to much?

These siezures are going to be what takes his little life. It sounds bad I know, maybe not today or next year, but this will be what takes him. Thanks for the neglect that caused the brain injury that in turn caused these seizures. Your brain can't live seizing like this. And he could go back into status at any time. Then what do we do? I guess we enjoy every second we have him, and do everything we can, and make him as happy as possible.

I mean, what else do you do?

Not happy about those leads

Ok, all better

Nice EEG hair baby!