Wednesday, December 31, 2014

A new year coming!

Ok I swear swear swear I'm going to try and post once a week! That is my New Years resolution!

Things have been quiet around here, which is a good thing in the medically fragile life! In August we switched home nursing companies and finally got a great nurse! She currently works three days a week and we love her! 

It's a good thing because in February, this Mommy is starting school! Yep, I'm finally digging in and going back to finish nursing school. Big things will be happening this year, and I feel like its the beginning of amazing things! Daddy will become the stay at home parent, and when I'm working we will finally be able to buy our dream home that will be Jax friendly! And then we hope to adopt one more girly to our home, and give Arina a sister!

Jax has been doing good too! We are celebrating no unplanned hospital stays in 2014! We had a few overnighters for various adjustments, but no big unplanned stays! He still has big problems with vomiting and blood in his g tube, but we don't know why and it hasn't really gotten worse. He can't have carafate, which really helps his stomach, because it clogs his g tube. If his g tube can't drain he vomits more, so it's a hard thing to juggle. Respiratory-wise he is still on higher oxygen needs than he used to be, but we're just thinking this is a new normal. Since there is no significant change in his heart function. Those lungs have taken more than a couple of nasty beatings in 9 years, and their going to be finicky! 

We hope you all had a great year, and here's to an amazing 2015!!!