Ok I swear swear swear I'm going to try and post once a week! That is my New Years resolution!
Wednesday, December 31, 2014
Posted by Lacey at 4:47 PM
Tuesday, August 26, 2014
Posted by Lacey at 10:34 AM
Tuesday, June 17, 2014
I'm so sorry to all of our blog readers! I've been a bad, bad blogger!
Things are good around here! Crazy, but those who have 5 children tend to be a tad crazy! We found out right after my last blog that we had to move. We sold our home in Utah when we moved, and haven't been able to buy here in Cali yet, as prices are much higher! Finding a good home, with everything we need was not easy. And of course moving a 3000 square foot home is beyond stressful!
But we have been moved about a week, and we are finally winding down and able to relax a bit!
Jax is doing good as well. He's had some tummy issues. Bleeding out of his g tube, lots of gagging and vomiting. This is causing respiratory issues because he aspirates every time he vomits, so he has been above baseline oxygen for a couple weeks now. We started Carafate, and that has been a wonder drug! No more bleeding, and I'm actually getting a lot less acid out of his g tube as well. I'm just hoping once the drug is stopped he continues to do well.
He is having a new port placed on the 27th. We can't wait to have our access back. Blood draws have been a nightmare! We have labs that need to be done but we are holding out as long as possible to hopefully have our port back first!
Still fighting the school with Jax. For some reason they have been really bad with getting him what he needs and deserves! Now that we have a nurse that we trust to send Jax to school with, we are anxious to give the classroom a try. We were supposed to amend his IEP so he could start extended school year last week. Now we are nearly halfway done with extended school year and still no IEP! Don't worry, I've just emailed the director of special ed, because I am at the end of my rope with them!
Arina is her crazy, princess self! She is starting to say more and more words! Now if we can just get her to put more than one word together! She thrives in school. She actually does better with her wandering and running at school than at home. She's escaped the house a few times, and now with all the baby locks its like Fort Knox around here! But at school she no longer needs someone to hold her hand outside. She follows the line and stays with her class.
Just in the last few days we've also had some exciting potty experiences. She is pointing to her diaper, and when I plop her on the potty, she's gone three times for me! I think she's finally grasping the concept of what the potty is for!
I can't believe how big she is getting! It seems like just yesterday we were taking her out of the orphanage.
I am so blessed with my amazing babies and wonderful family and friends!!
Posted by Lacey at 9:35 PM
Friday, April 4, 2014
Wow I've done it again, gone a couple week without a single blog post!
Posted by Lacey at 1:25 PM
Saturday, March 8, 2014
Posted by Lacey at 2:05 PM
Tuesday, March 4, 2014
How many times have I said I'm done blogging?
And I always change my mind!
Maybe its because I've met so many amazing people and kidos
through my blog!
Maybe its because I know you just can't get enough of these two!
So I give in.....
we aren't going anywhere!
Posted by Lacey at 10:15 PM
Saturday, February 22, 2014
We are going to be shutting down our blog! After going back and forth for about a year now, I've decided finally its time! I originally wanted to keep it to print and use as a sort or keepsake book. But since I no longer post much, there's not much to "keep"
Posted by Lacey at 10:00 PM
Tuesday, February 11, 2014
As I listen more and more to people saying that they lost friends after they had a child with special needs, or they are no longer getting phone calls to join friends for dinner or a party it made me sad!
Posted by Lacey at 10:05 AM
Tuesday, January 28, 2014
Ukraine is in a battle for freedom right now! And no, it's not neo nazi activists! That's the most annoying comment I hear from people who just assume!
Posted by Lacey at 5:41 PM
Monday, January 20, 2014
She walks down the row of people,
and hands out hug after hug!
I have yet to see a person turn her away, or not have a huge smile on their face after interacting with my beautiful girl!
Sometimes its fun to just let her do her thing!
And you better believe that most of those people will remember that little girl at the parade, if Down syndrome is ever brought up with them again. Or maybe they are told their unborn baby will have Down syndrome. Hopefully they will remember her little face, and think that it may be alright!
Posted by Lacey at 9:12 PM
Wednesday, January 15, 2014
Posted by Lacey at 10:12 PM
Tuesday, January 7, 2014
As you can imagine, being the sibling to a medically fragile child is not easy!
Posted by Lacey at 9:58 AM