The standing girl!

Jax is doing ok. He only lays on one side, so when I put him to bed I try to lay him more on the other side. But then he tries to move his leg over, and eventually cries in pain, so I lay him back on the other side. Tomorrow I take him to the fracture clinic, and hopefully can have a nice chat with him about Jax bones.
I wanted to answer a few questions I've had from people. The first one I've gotten a lot is about Jax calcium levels and is he's on calcium. He has been on calcium almost since birth. With the heavy doses of diuretics he gets, he is on calcium, potassium, sodium, etc. He gets 600 mg of calcium a day! But that barely keeps his calcium levels normal, so he's not really getting extra calcium.
Another one is if the ketogenic diet could have made this worse? That I don't know either. I have an email in to his ketogenic dietitian, asking her. If it is, I'm going to be ticked! That would be one more thing that they failed to tell me about the diet before starting it. Yea, I didn't ask all these questions, but when your child is dying in the ICU, your brain is not functioning properly. You would do anything to save him! This diet was started as he was waking up from a medically induced coma. They told me if he survived, that this diet could be started to try and stop the seizures. But they gave us only about a 30% chance that he would survive the coma. This was the sickest he had ever been, ever!

The last question was how they had his leg casted, and if they were going to put a hard cast on. They have it splinted right now, like in the previous post pictures. In the ER paperwork, they said this type of fracture they don't usually cast, but my ped said with his fragile bones, they might to keep it more stable. I hate the splint, I would rather have a hard cast to protect it better. We'll see tomorrow.
Also, the fracture is not all the way through the bone. If I can get a good picture of it, I'll post that, its on one side, down towards his knee, so its not the kind that would typically need surgery to put back in place!

As for the other Rugg-rat, she is doing new things everyday. I look at her and can't believe she was given up simply because of an extra chromosome. She is a healthy, beautiful, baby girl! What else do you need? But thats how a lot of these kids are. If a child has one seizure at birth, they consider them special needs, and place them in orphanages!
Her new thing is the courtesy laugh. I'm going to try and get it on video, because its hilarious! She started doing it on Christmas day, when a lot of people were watching her. Oh yea, she knows how to get attention!



She also is standing against furniture. She doesn't move her feet at all when you try and walk with her, and she can't pull herself up yet, but she is standing! It would be funny if she walked soon, she's only the size of a 6 month old, so seeing her walk would be a crack up!
Look, its my good friend Mickey!