Christmas spirits

For some reason I'm having a hard time getting into the Christmas spirit. I know life is busy right now, but we haven't put our tree up, and I haven't bought a single Christmas present! Now I'm getting a little panicky because we are into December and I'm way behind! .
Maybe its that we don't really know whats going on with Jax. We are weaning his ketogenic diet right now, and I've noticed a couple of seizures, and something new and disturbing. I'll try to explain...when Jaxson came out of the medically induced coma and we started the diet, his seizures were pretty controlled. But he had this new movement, it was just constant movement. Almost like he was high or something. He wouldn't sleep at all unless he was drugged! Thats when I first learned of melatonin. Neuro called it a movement disorder, and that it could happen when you take all the seizures away that he was having. It did slowly get better over time, but it seems like thats kind of what he's doing now. He goes to sleep ok, usually, but he is waking up at night, and he hasn't done that since starting the vent. I also have been watching his movement that seems to be pretty constant, and he's grinding his teeth so hard it has to hurt! It doesn't make sense that this would happen when weaning the diet, but I have no other idea's. I'm going to call the nutritionist today and see if we should restart the full diet and see if it subsides. If it does, he may be on this diet for life. Its not a huge deal, besides measuring food and mixing it at a specific temperature. But it makes their cholesterol high, and it doesn't help his lungs because it causes the fatty fluid to leak into his lung spaces.
Daddy takes the princess for a sleep study tonight. I'm very interested to see what that shows!
Although the spirit isn't as strong for me this year, at Disneyland, it was amazing. I got very excited about the beautiful Christmas decorations everywhere!
Small World was stunning!


Main street was beautiful as well, with the huge Christmas tree at the end!


The castle...no words, it speaks for itself!


The man, his mouse, and the beautiful snow covered castle!

Oh the Haunted Mansion with its Nightmare before Christmas theme! Even the boys were amazed. The whole ride is different. We went on it at least 4 times!




Our large, fun group. Ella's sisters, Jake and Emily, and our boys with Arina!


We went to see our Ella Sunday night. We haven't seen her since she started chemo. She wasn't too excited at first to see her new friend.

But she warmed up and soon was giving kisses,

and showing Arina her room,

and her DVD player

It was a long day and everyone was out for the count!