An ok day

Jax had a little better day today. Didn't wake up screaming last night. I had to make a few trips for beeping monitors, but thats nothing new. He still needed pain meds pretty regularly today. I had to change his dressing twice. Tonight when I changed it you can clearly see were the skin is breaking down around the hole. Also, half of its covered by a dressing I can't remove. I hate to see the breakdown under there, he's going to get an infection just from that. We are going back to the ped tomorrow and the surgeon on Thursday. He may take the whole dressing off, heck, he may even say to just go ahead and put the button in. Hopefully that will help. If the button is going to leak like this I don't want it. Its not like a leaky g-tube, this is stool that leaks out. (Sorry for the grossness. Don't look at this next pic if your grossed out.)

Tonight Lily and her mom brought us dinner. She was very nervous at first around all of Jax tubes. She didn't want to get to close. But after a few minutes she warmed right up. She even posed for a couple of pics for me. She insisted on taking a pic of us. Sorry Lily, I'm not posting it, I look way to fat.

Thank's so much for dinner, its a huge burden off me right now. (Maybe now I can clean my house a little)