Saturday, June 6, 2009

The bug's are coming

Surgery countdown: 9 days to go

Yesterday we went to the air show with Hope Kids. I'm so glad that we went because Mondo loves anything military and we wouldn't have been able to go, I'm not fighting 400,000 people, which was what they expected on Saturday. Jax wasn't so keen though, it was way to loud for him. I covered his ears but when they would go superfast, he would just cry. Well, I guess the good thing is we know he's not deaf! Just kidding, we already knew that, he does need hearing aids however.

Please ignore my sour face and crazy, windblown hair.




I got some video of Jax trying to roll over. Its a little dark because there is no light on my camera. He still has only gotten all the way over twice, but man he tries so hard. So this video is him almost making it. I think he is still very weak and poops out easily. Plus I'm hearing buggie's in his lungs and airway today. We can't start this right now, he's having surgery on the 16th, plus the stuff out of state in a month or so. Pray it doesn't get any worse than it is now.


I have been super tired today, I don't know what thats about, but I've kind of been a zombie. I guess life catches up to you sometime doesn't it? Tanner (who is autistic) has been a lot of work this year. Besides the problems with getting him to go to school, he acts up at home to. He's been worse than normal with other kids, so when the boys have friends over he fights and causes problems with their friends. He throws fits like a two year old if he doesn't get what he wants. The sad thing is, we'll tell him to stop, and he says he can't. I really don't think he knows how to calm himself, so if anyone knows how to calm an autistic child, please let me know.

17 comments:

Denise said...

Oh my friend, you have a lot on your plate don't you. You are so strong most of the time and it is okay to tire out sometimes. Day at a time is all you can do. I can't wait to see the video of Jax rolling all the way over..I know it is a lot of work for him...sweet boy!!!

Heather said...

I know you are tired.Wish I had the answers for you.Wish I had a ton of cash laying around to ease the way,lift the financial burdens and allow you to catch a much needed break.Instead I pray for your continued strength and Lacey,you are one of the strongest woman I have ever known.Ever.Kiss that sweet boy and can't wait to see him roll.What a hard worker he is,even with all his unresolved issues ... what a fighter.What a miracle ... I watched the video again tonight.Make me cry but made me realize what a strong boy he is and he will find his way.He WILL.

Cammie Heflin said...

Is Tanner on a sensory diet? That helped Cooper tremendously. If you need info I can send it your way!

Junior said...

Way to go Jax keep working are doing so good at trying to roll over.
Lacey keeping you in our prayers, you have so much on you right now.
Have you ever tried a waited blanket with Tanner? It really helps Junior when he is at that can't cope point, and I got the idea from a friend whose child is autistic.

Ruby's Mom said...

Jax is such a cutie and he's trying so hard.Way to go Jax!
Lacey,I think you are amazing!

Kristen's mom said...

My girls also went to the air show. They took some amazing pics. I know how you feel about being tired, sometimes I feel like everything has been sucked out of me. Little by little and day by day the strength does come back. Tons of us are praying for you and sweet Jaxson!

Junior said...

sorry Lacey, I wasn't thinking and spelled that wrong, it is a weighted blanket. Junior has a blanket that weighs about 8 lbs(it has little squares kind of like on a quilt and each one has polly pellets inside for weight). I lay it over his lap or even over him like a regular blanket and it is very calming for him.

Cammie Heflin said...

A sensory diet is a schedule that you can use to help him get his sensory input that he needs. You can do brushing, swinging, jumping, deep pressure, spinning etc. Every two hours you do a different activity to help calm. Usually deep pressure activities such as a weighted blanket, jumping, hugs, joint compressions etc.

sturpin said...

Oh gosh - I hope Jax gets better. We had our heart surgery scheduled three times before she actually had it because she kept getting sick. I'll pray.

I understand the exhaustion - hang in there. You are one strong lady.

Cammie Heflin said...

http://www.sensorysmarts.com/diet.html

this was a good site that I found, I'll try to find a copy of Cooper's that we used to use. We did it everyday for awhile then just did activities as he needed them. Does he have an OT that can help?

ParkerMama said...

Hey, catch me up. 9 days until surgery in Boston? I get lost easily. sigh.

Tammy and Parker
http://www.prayingforparker.com
http://www.5minutesforspecialneeds.com
ParkerMama on Twitter

The VW's said...

The air show looks like so much fun! Glad you guys had a chance to go!

I'll be praying that Jax's lungs clear up in time for surgery! I'm sorry that you are feeling tired and overwhelmed. I can only imagine the toll life is taking on you right now. You have a lot to get through in the near future! I'll be praying!

Great job Jax trying to roll over!!! You are such a fighter! Gavin can't roll from his belly to back, only from his back to belly. It's usually done the other way first, so either Gavin just really likes his belly or he's abnormal? Anyway, Keep it up buddy! You are such an inspiration! HUGS!!!

Lily said...

Way to go Jaxson! My nephew is Carson Smith, I don't now what Cheryl does to calm him down, but the one thing I noticed at a family wedding and other places is that he always carries his own portable DVD player around. It's his, he watches what he wants, whenever he needs too. He is much happier when he has it, and people aren't bugging him!

Pam said...

Gah! I totally wanted to go to that air show. Rhett would have loved it. He is big into planes, but it was before payday, and we were crunching pennies, and saving gas.

But we will be there Saturday for sure!

I've heard that UP is a really good movie.

I can't wait to see you guys again.

I totally hear you on the whole thing with your older one though. This has been a really hard year for us with Dakota as well.

Sigh. It's never easy is it? Sending lots of hugs your way.

Conrad, Megan and Our Precious Keaton said...

Hi Lacey, thanks for the pics - always love to see cute pics! Lacey, my sisters little boy Deqlan has autism and she does alot of sensory activities such as brushing and she is doing the special diet, I have given her your blog address and she is going to contact you today with some ideas - hope that helps a little bit!
Hang in there my friend!
God bless and hugs for Jax,
Megan and Keaton

Melissa said...

UGH...YEAH, you SHOULD be tired! You POOR THING!!! I really don't know how you do it...You're so amazing & you have every right to have a grumpy looking face:0) even though it's fine...LOL I'd break the camera by now!!!!

OH Jax, you're so close to rolling over!!! GOOD JOB BUDDY!!
{{HUGS}}
Melissa & Your buddy Master Dillon xoxoxo

Amber said...

I was thinking that you looked cute in that picture! :0)

Um...don't know if you have an e-mail address...I'd be more than happy to share my foster/adopt experience. *and share a secret with you* ;0) It would bog down this comment section! :0)
bakerfam01@verizon.net