Friday, February 27, 2009

Not for the faint of heart

I asked this mom if I could repost these poems that she wrote for her little girl Charlotte. She had trisomy 16, and was not expected to survive. But she lived to be a big 3 1/2. She just passed away Saturday from RSV. This first poem she wrote in January before Charlotte passed. Its so cute and it hits home with so many of us. Read it and you'll see.

Goodnight Boo

In Boo's room all painted in pink
there is a feeding pump with lights that blink
and alarms that ring if the tube has a kink.
And an IV Pole and a feeding bag full
of Pediasure, good for body and soul.
And an air purifier and a humidifier
and a pulse oximeter with 5 feet of wire.
And a night stand and a floor fan
and a red lit probe taped to Boo's foot or hand.
And Breath Right Strips and Tender Grips
and Albuterol and Tylenol
and a princess night light shining down the hall.
Goodnight Boo.
Goodnight to all your special things too:
Good night wire, and humidifier
Goodnight fan and IV stand
Goodnight Grips and Goodnight Strips
Goodnight meds like Prevacid and
goodnight to pumps that keep you fed.
Goodnight to steady vital signs
Goodnight to tube and probe and lines
Goodnight to blinking lights and beeps
Goodnight to Boo, now fast asleep.
Isn't it sweet? I will post the other one tomorrow. She just wrote it for her funeral, and trust me, you better bring the tissues.


Junior said...

Such a beautiful little girl, prayers to her family.
The poem is so cute.

Mommy to those Special Ks said...

Wow that poem was great. My prayers are with her family.

Heather said...

Made me cry.Made me thankful.Made me pause to pray for this sweet angel and her family.

The VW's said...

What a sweet poem and what a sweet girl! I'm saying a prayer for her family right now! May God be with them and you!

Heather @ boy, girl, and a pug said...

The tears are flowing honey! I can't imagine their pain.