Happy Happy Birthday Baby!!

Today is the day. The day we celebrate the life of one sweet boy we never thought would get this far. I thought I'd start with his video montage of his first 3 years of life. You've probably seen it before, but its the fastest way to tell his story if you don't already know it.

Make video montages at www.OneTrueMedia.com

So you can see he's one miracle boy! This last year was rough. It started right in January when Jaxson aspirated and stopped breathing in the grocery store. He took an ambulance ride to the hospital were we decided his nissen probably wasn't intact.

So in Febuary, just one month into the new year he had surgery to redo his nissen that had failed. We also put tubes in his ears and finally got an accurate hearing test. Which of course showed his hearing is not great.

Before Febuary was even over he went back into the hospital for a couple of days with RSV. Luckily he breezed through it. Just two days later we were back, thinking he had a pulmonary embolism. So we started March in the hospital as well. Thats when we found the SVC vein was almost totally blocked, and we started thinking of how we were going to repair that.

It wasn't all bad though. We decided we needed to get away and took our first trip of the year to California, our home away from home.

The next couple of months were spent in doctors offices trying to figure out how we were going to fix his SVC, his face was getting puffier by the day.

In June he had his second surgery of the year. His cecostomy tube was placed. A one hour surgery turned into 3 hours when they could get no access, finally needing to do a cutdown in his left groin.

It seemed to take him forever to recover from that. He had pain for weeks, and we wondered if putting the tube in was the right thing to do. All this time still waiting for Boston to call about his SVC.

We had a BBQ at our house because Denise was here from California. She got to meet a lethargic, sick baby. He had no shirt on because he vomited on himself in front of all his friends.

We decided it was break time again. It had been a long year so far, so in August we escaped back home to California. We saw our best friend for the second time that year. Our little Zoey.

Back home, back to the hospital. In Sept. he had surgery to see what his pressures were and to try and balloon the SVC. Thats when the trach talk got serious and we realized that was our only option. His whole body was now puffy and he was in serious heart failure.

His oxygen needs were getting out of control. So not even a month after that surgery, we were watching them take our baby down that long hall for yet another surgery.

His tracheostomy.

But now, after a long year of constant hospital stays and 4 surgeries, he's celebrating his 4th birthday healthy! My amazing little fighter that shows me how to truly be strong.

My little miracle boy!

HAPPY, HAPPY BIRTHDAY OUR LITTLE JAXSON ROO!!!!!

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