Friday, March 20, 2015

Hoarding, buried alive!

I am a supply hoarder! 
And I am probably not the first person to be extremely proud to own that title!
The reason I'm so proud is my hoarding has saved us a lot of money, time in a hospital, and quite possibly Jax health.

Besides Jax two sets of shelves in his bedroom, I have supplies stashed....

In every closet....

And every small space available!

We are a month behind our trach/vent supplies. 4 weeks we haven't received a thing. 
Jax has technically three insurances, yet our home care company still can't pull their head out and figure out how to bill our supplies to his primary insurance, so they just stopped sending them! It doesn't matter how much coverage you have, things still get denied. There are many things We have to fight for and still can't get our hands on, things Jax needs.
We are hoping we finally have the right authorization sent, but who knows how long it will take to process. 

Lucky for me I hoard!

Because this little man deserves everything he needs to thrive!! 
Even if that means being buried in supplies!

Thursday, March 12, 2015

Birth family update!

I feel like I left everyone hanging with our story of finding Arinas birth family. 

Well it was indeed them! 

Her parents were so excited to see pictures and know that she had a family. Her mom says she was so upset, but they couldn't care for a child with special needs. She said she was depressed for a long time and that there's not a day that goes by that they don't think of her. We sent them a bunch of pictures, and we got pictures of her little brother.
Is this not the spitting image of our princess? From the blue eyes to the flat nose!

Her family is sending us a package, and we are getting a package together to send to them, including something special from Disneyland for her little brother! 
We are so excited to have a relationship with them! It's another great way to keep Arinas roots in her life!