Epilepsy Awareness month

November is Epilepsy awareness month. I had no idea until Heather told us. As you know epilepsy is a huge part of Jaxsons life. His seizures started from hospital neglect, and they've pretty much taken over his life since then. He has intractable epilepsy, which pretty much means he has every kind of seizure and they not controlable. He has had infantile spasms, and every other seizure type you can imagine. The seizures that he has the most right now are not horrible, but he has them around 50 times a day. And his EEG shows a constant wave of seizure activity. This is why my almost 4 year old can't sit up, crawl, or even hold his head up. He is like a newborn. Epilepsy can be a devastating disease.

His life consists of constant EEG's
And I can never forget January 08 when his little brain went into full blown status (constant seizing) We almost lost him that month. The coma they put him into to stop his brain activity also stops other organs. His body filled with fluid, they were'nt able to ventilate him because his lungs were so full of fluid, and his blood pressures were non existant. But the warrior showed who is the strongest of them all, him.
(Sorry, the second pic is hard to look at)

So go here to learn about epilepsy and what it means for some kids. And find new ways to help seizures. We've tried every med, treatment, diet you can think of and nothing has helped so far.
I'm hoping to get Jaxson to a world renown doctor in California, in hopes that he can help my little man. Because like Heather said, I know he's in that little body, and if we can control the seizures we will see him blossom.