Friday, August 5, 2011

Just going swimming!

Jax had a good two nights with the increased PEEP. He still wakes up at night, not sure why, but he's not coughing on the vent. The problem is still when he comes off the vent, the coughing comes back with a vengeance!
Last night the yucky, pale color came back, and its still here today.
But I'm coming to realize that this just may be Jax. He will never be healthy. His body works extremely hard just to keep him alive. Its just been through the wringer too many times.
I'll talk to my ped today on the phone, but we are not going in.
No today, we are going swimming!
Pictures to follow!

8 comments:

Zoey's mom, Heather said...

Go have fun. Live life,filled with laughter and joy. That is what it is all about.

Enjoy Ray. So glad you are all home together!

Glad that Jax seems better. Prayers for healthy days ahead.

Rochelle said...

Enjoy your day swimming!

Chromosomally Enhanced said...

yeah for swimming...maybe a little sunshine and fun is just what Jax needs and you! sometimes it is hard to come to grips with a new "normal" but you are amazing and you know what is best for your Jax! smiles

Kristin said...

Great idea.

-Got your message the other night really late... call me if you still have the photoshop question :)

ParkerMama said...

Sure beats sitting up here with your kid in the cath lab....again. :/


Tammy and Parker
www.prayingforparker.com

Our Family said...

better to enjoy your time together than worry it away. hope you had fun!!

Twilson9608 said...

Have fun swimming!!!

Shelly Turpin said...

I bet it's the PEEP - keeps those airways open.

have fun swimming!