Monday, January 5, 2009

One year ago today...

Jaxson it was a year ago this week that your brain was taken over by siezures. It took our own peditrician to admit you and see what was wrong. The nuerologists finally took notice after an EEG showed you were in status. First they put you on propofal to try and stop them.

After that didn't work then we had to give you pentabarb to put you in a medically induced coma. That made your body so sick. You blew up like a balloon and your lungs filled with fluid. They told us if this coma didn't kill you they would send you home on hospice, because status doesn't usually go away and it kills the brain.

After we turned off the medication, they fluid went down and you started to wake up. As your brain activity came back the siezures actually looked better. We knew you were a fighter and once again you pulled through.

It took a while to get you back off the vent because your lungs are already so sick. But you came off and back up to the floor we went.

After 3 weeks in the hospital we took you back home. Not our longest stay, and not our shortest stay, but one of our scariest stay since the brain injury itself. You've been given so many trials, and you always come through. You are our little hero. We love you baby boy.


hjoy said...

Jaxson you are one tough little champion. Keep up the fight, big hugs.

Heidi & Junior

Pam said...

Well, I must admit I am quite smitten with him myself.

Keep fighting sweetie, and know that you have lots of friends cheering you on.


Druava Family said...

Wow! I have never seen these pictures. Poor guy. He is such a tough fighter. A true hero!!

Melissa said...

WOW JAX, you are an AMAZING HERO! God Bless you sunshine...may you have many Happy & Healthy years ahead of you with more & more progress!

Hector and Jennifer Varanini Sanchez said...

Jaxson you are a dear sweet little boy. I am so amazed and impressed by your strength. Fight with all your might handsome boy!!!! We are all cheering for you.