Sunday, January 11, 2009

Grateful for friends


Jax in his hope kids shirt after we went and saw Desperoux with them yesterday I just wanted all of my new blogger friends to know how happy I am to have found you. When Jax was a baby we used to go to our local Ds functions all the time. He even had a little girlfriend we met in the hospital that was almost his same age and she had a lot of the same medical problems as him. We used to joke that they were going to get married when they got older. But as her pulmonary hypertension got worse, and they couldn't keep her off the vent, I wondered how much longer we would have her. And she passed away in May of 07. We were devastated.

Then when Jax had his brain injury, people at the downs functions kept asking why he couldn't sit up And why can't he do this and that. I got depressed about my poor baby and we stopped going. I've now realized that my baby will do things on his own time and I can't worry about other people. So I'm having a ball meeting all these new friends Ds and other, and its been a great support system for me. Helping reassure other people that it will be ok and knowing people would do the same for us when we need a pick me up.

Thanks to all of our new friends. We love you all.

And the site is still under construction. I may have to give in and let someone do it for me.

Hugs from Lacey and Jax

10 comments:

Cammie Heflin said...

I LOVE blogging, I have "met" so many new people, I love it. It's so nice to have people understand where you are coming from in regards to your child. I do get sick of hearing "So is she walking yet?" Uh no, she doesn't crawl yet and bears no weight on her legs! But she will walk when she is ready no matter when that will be!

hjoy said...

It is so nice to meet other bloggers and find many others dealing with the same issues.
We get the same questions and Junior is 10. Is he ever going to walk and the other big one is does he talk.
I usually respond with no he won't likely ever walk but no biggie thats what his wheels are for. With the speech response I tell people of course he talks, he may not use his voice but boy does he know how to communicate.
Give that big boy a hug from us.

Michelle said...

The blogging community is great! I'm so glad you're finding support online - and you're right, Jaxson will make his own timeline for his accomplishments!

Maureen said...

You go Lacy!! When I first had Penny, I thought I was alone too, but I started with www.unringingthebell.typepad.com because I was actually in the PICU waiting room at the same as the author, Tricia and I didn't even know it until a few months (a month?) later. In fact, Penny bumped Georgia on the surgery roster since Penny was more accute. When I realized how many mothers (and a few dads) were out there sharing their life I was so inspired. You are better than I though, I wasn't motivated to meet others in person at first.

I love your new blog layout, you must have been doing a lot of work on this :)

Heather said...

Our motto,taken from another little one who also got handed more than his fair share,is ..."Slow and Steady Wins the Race"The journey is indeed eased with the support of friends. Even if those friends they come in the form of ones we may never be blessed to even meet in person.I look forward to watching Zoey and Jaxson find their way together.She is pretty good girlfriend material although we know we could never and would never want to replace his first love.But .. we're here.

Heather said...

Looks like you got the blog thing figured out and it looks great!!!

My name is Sarah said...

Hey Jax, It's me Sarah. I am back. You are looking dapper little buddy. How did you like the movie? I haven't seen that one yet.

The VW's said...

I don't know what I would do without all my blogging friends! This avenue of support has been such a blessing to me! I am so happy to have met you in this wonderful blogger world and look forward to cheering your little man on in the years to come!

I love the new Mickey look! Great job!

Hugs from Michigan,

Alicia and Gavin

My Three Sons said...

I think that God had a lot to do with us meeting!! I even get to talk to you for 2 hours on the phone. Even though I don't get out much, the phone call is the next best thing. Thanks for sharing your cutie with us.

My blogging buddies have sure helped me through a lot of challenging times and it such a relief to see all of these bloggers rooting and praying for us.

Hope you have a great day.

Pam said...

LOVE your new blog look!

I am curious about the little girl that you are talking about in this post. Rhett had a neighbor for a while when he had his OD who had PH, and was super sick. I am wondering if it is the same one as we have always wondered about her.

He looks so cute in his Hope Kids T-shirt!! I am so bummed we missed it though.

We SO need to get together....

((HUGS))