Saturday, September 18, 2010

Crazy days!

These last few days have been seriously crazy. I know I have so much still to do, but I wander the house aimlessly, my brain trying to decide what to do first. Then nothing gets done! Makayla's crib is up, and that room is about ready for my nieces that will be staying there while we are gone, and then for Makayla herself!
Carter has a nasty cold. I call it the back to school cold. The bad part is now Jax is junky. I knew he was going to do this right before we left. I'm just praying it doesn't get any worse than it is now. My ped didn't seem to concerned, she said its just the Rhino virus going around. Rhino virus seriously lives in Jax body, it comes up on every VRP he ever gets! The last two days he's been super junky, but no oxygen increase or fevers. Pray it stays that way. If he's sick the day we fly out, I'll go nuts!
His albumin level is low again. Cardio thinks its just because he's got this cold, but I noticed his puffiness before the junky cough started. This is another frustrating thing to leave behind. We'll recheck the level Wednsday, to see what it does. But if it gets lower while I'm gone then he'll need to go in and have IV albumin.
The good thing is I signed up for this online health center where I can see all of Jax labs, x-rays, and talk to his ped through email. This will be really helpful when I'm out of the country so I can see whats going on with him and keep in touch with my ped.

Thanks again to all of my friends, you guys are my rock!
And to all those that only want to stir up trouble, go elsewhere! I'm not putting this blog to private because that would be what you want, and there are far to many people that come here to narrow it to 100. This is not only my journal of our journey, but a support group for all things special needs. Things are not always kicks and giggles in the life of medically fragile special needs. So if you don't like the whiny posts, don't come back! But trying to tear us apart will only make us stronger! Period!

18 comments:

Mel said...

You tell 'em Lacey!! Ok, now, get back to work! :)

ANewKindOfPerfect said...

It's awesome that you can see Jax medical information online, and email with his doctor. That will be a huge help when you are out of the country. I hope that this ickyness leaves your house quickly, so everyone is healthy when you go. It sounds like they will be in good hands while you are gone. How exciting that Makayla's crib is up and ready for her!!

And to your harassers, I hope they get theirs in the end. Karma's a bitch!

Rochelle said...

We will pray for healthy boys especially as you are leaving soon.

Anonymous said...

well said Lacey!!! you rock!! i'm praying everything is gonna go the way you planned and your babies are going to be fine while you're gone, im sure a lot of us who follow you will be praying ;) i just cant wait to see Makayla with his big brothers! and to read all the incredible stories of all of you together!
hugs from jacksonville
Veronica Garcia

Mama Mason-Mann said...

I'm so nervously excited for/with you Lacey! I can't wait for you to hold that special little girl in your arms. And sorry if you're having trouble with some "commenters". I'm glad you're not going private! I think you're an inspiration to so many!!! HUGS!

Jessica said...

You are awsome! Keep on writing, we love the overflow of inspiration!

Dotty said...

Prayers coming for you all, and extra ones for Jax. Don't let those idiots bring you down, good for you for standing your ground, not putting your blog to private is the right thing to do, your amazing!

Lauraa said...

Aw! She's going to be a beautiful addition to an already beautiful family. With all the blood, sweat and tears that have gone into getting her into her "forever home", I'm sure she'll be worth it! I know you've already told us probably 100s of times, but how old is she at the moment?
I wish all the best of luck to Jaxson, especially while you're gone. I'm sure he'll be fine! :D He's a little trooper!

Shonda said...

So excited that your going to get that sweet baby girl. Lots of prayers for you and your family.

Tiffany said...

Back to school colds are the pits. I get them every year. Jax will do great. He will be under great care and has some great helpers in his brothers who probably know just as much about him and his day to day things as you do. Praying for the germs to go away and that you will have a chance to enjoy all the craziness because having it means Makayla is on her way home.

Anne and Whitney: Up, Down and All Around said...

sorry to hear it sounds like you have gotten some not so comments recently - seriously, what is wrong w/ people???!!! best of luck with all of your preparations you still have left to go until you go get makayla :)

Alicia said...

I have been, and will continue to say many prayers about your journey. I'm praying Jax and Carter kick this cold to the curb, where it belongs, and no one else gets sick.

Mommy to those Special Ks said...

Ugh sorry you have haters Lacey. They suck! Just try to ignore them. Can't WAIT for your baby girl to come HOME!!!!

Loren Stow said...

I truly hope Jax is better by the time you leave - but everything will be ok, I just know it!! Good luck!!!

Anonymous said...

Sending lots of prayers your way!! Blessings - Maureen C

Shelly Turpin said...

I love that online med info - I wish we had that. I can't believe how close it's getting. We will be praying for y'all in Ukraine and the guys back in Utah. You rock!

The VW's said...

I would be going crazy trying to get everything in order for while you are gone....I can only imagine how you must be feeling! But, if anyone can pull this off it's you! Just think, you will soon be home with 5 precious children...one of them a girl!!! :)

Bugg's mama said...

Go, mama, Go! You're so freaking awesome! I'm wicked excited for you & your family to get your baby soon!

Love Bree