Trachs and such

Please pray today for my little friend Carter. His bronch yesterday was not good, and his tracheal Malaysia is horrible. His family has some decisions to make now. It felt like someone hit me in the stomach, because it reminds me of not long ago making this decision for Jax. It was an extremely hard decision, and one I still sometimes regret. You know it hasn't been easy for us. There are many days were I hate the trach and want to rip it out. And a lot of Jax trach problems are due to his severe tracheal Malaysia. His airway collapses around his trach and makes him cough and produce more junk. Which means almost constant suctioning! We finally got the robinol yesterday. The crazy thing is about an hour after I gave it, he seemed junkier than ever. I was freaking out wondering if kids ever have an opposite reaction to it. Or maybe this happens at first and then it goes away. But I basically had to sit by him and constantly suction him. I'm also calling me ENT about the lidocaine neb. I need some things in my arsenal to try when things get bad, otherwise I'm going to lose my mind. Especially because we are going back to California in less than two weeks. We have a wedding and then of course days in Disneyland with our season passes. In March when we traveled with the trach it was a huge pain. Because although the air is better there for a trach, you are still changing humidity on him and it takes time to get used to it. I just remember sleeping next to him in the hotel so I could constantly suction him. It was not fun. So I plan on having all the drugs to combat that so we can have a good time!
Our new trachs came yesterday too. I really hope these help. I'm not so sure though. They are a little bigger in diameter. We are trying to open his airway more now that we know this size will fit. You know, after the nurse shoved it in and made him bleed all over the place! The size trach he has now is newborn size. And the new one is still infant size,its actually the size they intubated him with when he was 4 months old! So he actually went down a size because of the narrowing in his airway from frequent intubations!
Here you can see the difference in the trachs. The one on the right is a normal trach. The left is his old custom trach. You can see how much longer it it. We are trying to bypass as much of the trachea as possible.

This picture is his old and new customs. You can see the one on the right is a tad bigger around. Our hope is it will push the airway open and help the coughing fits. We'll see! But look how tiny the holes are compared to my fingers. How in the world to you breathe through that tiny hole?!

Echo tomorrow. Send good heart vibes and good pulmonary pressure vibes please!!

I'm still working on sending out all the auction items. Email me if you haven't heard from me yet. Also, the bows are up on Makayla's blog to buy. They are in the right hand corner!