Wednesday, May 26, 2010

A little nervous

I'm a little nervous about the echo this morning. I'm not sure when I'll find out the results which is a little frustrating. Let me give you a little background. Our childrens hospital, PCMC, is 45 mins to an hour away. They just built a new hospital literally 5 mins away from us. This new hospital is not a childrens hospital, but they have outpatient clinics there with doctors from PCMC. This is fantastic for us, I would have never made it all the way to the hospital for a 9 am appointment unless I got up at 5! When we have an echo done at the hospital, the doctor always just comes and tells me the results right then. Well at this hospital our doctor wasn't there, so I don't know how soon they read it and put it into the system. As soon as its in the system my ped can pull it up on her computer. She's going to try at lunch and see if its up.
The reason I'm worried is the echo tech kept asking me weird questions. She asked me if he had a line in that went close to his heart. I said no. She asked me if recently he had a line in. I told her he hasn't had a line in his upper body for two years. He's clotted off all of his major vessels in his upper body, making it impossible to put lines in. So now I'm worried he has a huge clot or extreme narrowing somewhere new in his heart. The techs aren't allowed to say anything to the parents. Probably because they are not trained to read the echo's and could possible give wrong info. I'm hoping its nothing, but Jax has a major clotting disorder. A clotting disorder that has already taken the life of a DS friend. We thought that Jax was doing good on his blood thinners, but maybe he has clots we haven't found yet.
Ugh, I need to keep myself busy or I'll go crazy!

19 comments:

ANewKindOfPerfect said...

I know it's damn near impossible, but try not to worry until you have reason to! That is what my motto is right now about this blood test we are waiting on for Peanut.

I hope your doctor can review the echo at lunch and give you the results. Good or bad, it's better than the icky waiting and unknown!

CFMama said...

Oh, I am praying you get the results ASAP!! For peace of mind if nothing else. All the questions would have gotten me worrying too.

Cathy said...

Praying for the results to be available as soon as possible!!!!

To Love Endlessly said...

What until you hear from the doctor to get too worked up. I know it's SOO hard, but keep yourself busy to get your mind off it. I'm praying for awesome results.

Rochelle said...

Praying for your peace and that you get the test results (and they are great) asap!

Anderson Family said...

I hate it when they ask you questions - because then you do start to worry. How was the hospital over there? Still haven't had any appointments there - but it is so much closer and more convenient. Praying you will get good answers soon!

mandd3 said...

Praying for fast answers. There is no point in telling you to not worry. It is almost impossible. Try to keep busy. Thinking of you and sweet Jax.

Becca said...

Hang in there!! Try not to worry until you have to, and hopefully you won't have to. And yes, it's easier said than done...

Hoping for good results!!!!!

Michelle said...

Praying, Lacey, hang in there.

Kelli said...

I hope that you get your results soon...the wait is often the worst part!

HUGS...and praying for good results!

kecia said...

i am sorry! we will keep you in our prayers!

Heather said...

Something tells me that if that is what it is,you'll be hearing from someone before too long ... for now we will send out prayers of peace to your worried heart.

Shari said...

I know it's so hard not to worry! Try to get the results when you can. I am praying the results will be available soon.

Michelle and Sean said...

Hopefully it is nothing!! I will keep you in my prayers while you are waiting.

I know how crappy it is to have to wait as we are still awaiting results from Atlanta. I really hope the doctor calls you soon!!

Sweet Pea's Mommy said...

Thinking positive thoughts for you!!!! I know it is hard not to worry, but keep trying!

Junior said...

Waiting is so hard, we are praying you get results quickly. Hugs

The VW's said...

Thinking of you and PRAYING!!! Hope you get the results soon, so your mind can be at ease. Love, Hugs and Prayers!!!

Hope said...

I'm praying hon. ((((HUGS))))

Anne and Whitney: Up, Down and All Around said...

oh lacey - i hope you are able to keep your self busy and keep your mind off of the echo somehow, but i would feel the exact same way - i hope the doc calls very soon!!!!!!