A backwards day

We had to get up bright and early this morning to see Ice Age 3. I needed to bath Jax, but he takes longer to bath because we have dressing's to put on. So we skipped the bath. Ice Age 3 definitely a go see, very cute. The boys laughed the whole time.
Around 3 I decided to go ahead and give Jax a bath, his g-tube and c-tube dressings didn't get changed this morning, so I took them all off, was ready to put him in the tub and thought. If I flush him out tonight, he's going to be stinky and I'll have to put a whole new dressing on again. So then I thought I will just flush him out right now. I can't leave his tubes undressed, he has grabby hands. So we did our flush out at 3 and then took a bath. A little backwards, but thats ok.
Jaxson has concerned me a little the last couple of days. He looks super puffy to me, and if he lays on his back for a while his eyes get puffy. He also had a couple of episodes were his alarm went off but when I went in there is O's were in his nose, but his sats were dropping. They came up on their own but I don't know why he's doing this. He also has been more lethargic. He almost looks stoned, which has me concerned for siezures again. Status siezures, that is. Its kind of funny how we were just talking about his status being different and now he is acting like he's in it. I'm going to watch him for a couple of days and wait for the increase in meds to start working, then we'll make a judgement. Cross those fingers for no status though, that would be very, very bad. The pic on the top left hand side of our blog was last time he was in status, not a pretty picture. I was trying to take his pic after his nice bath, he looks a little stoned don't ya think? No hands by the face like he usually does.

We are going swimming tomorrow. Can't wait to take some pics of Jax in the water. We are also going to a photo shoot on Tuesday. Jax is going to be in our down syndrome foundation's yearly calender. I'm so excited, I've been trying to get him in that for a while now. Its a beach scene. How fitting for us, and he'll be in his swimsuit. Sexy baby. I just hope it goes well. He's not easy to take pics of, even though he's sooo cute (I'm not biased) he can't sit up and he won't look at the camera and say cheese. So I'm crossing my fingers he behaves.

Oh and lastly. Today Lily's birthday bash giveaway is gift cards to walmart. We can all use those right. Hurry over and enter, you only have the rest of today.