Echo results

We had our echo today. Didn't take the camera, forgot, like I'm forgeting a lot these days.
I'll just say I think I'm more confused today than I've ever been. Our cardiologist came down to talk to us about the echo. Even though my ped ordered it, she' s out of town until next Wednsday, and I'm not waiting until then.
His pulmonary pressures are double what they were in March, and his valves are both leaking more, that would explain the heart failure. But my cardiologist thinks some of the puffiness may be from this and not the SVC. I don't think so, just because the puffiness started back in March when we found the SVC, and his pressures were lower then. He is deciding whether or not he wants to take him to the cath lab here, before we go to Boston. He can get an accurate reading of his pressures, and I guess the med they like to start them on for PH (calcium-channel blockers, like amlodipine) can sometimes make them worse, so they like to try it in the cath lab before starting it. But he is going to talk to our case manager and see if our insurance will pay for viagra first. The other med is cheaper so sometimes insurance won't pay for viagra unless you've tried the channel blockers first. So if we can get the viagra then we will start that and not do the cath for now.
Also he is going to call the cardiologist in Boston because he's not sure the cardiologist there has been contacted about Jax. A cardiologist needs to do the SVC work, not just an interventional radiologist. I feel like I'm back at square one with Boston. And my brain is spinning about what needs to be done with Jax right now.
I will be gone for the weekend without internet. I think that may be good. I use this as my vent as most of you know a little what I'm going through, or just have great ears to listen to me and I can get out my frustrations. But I've hit a brick wall, and I'm flat on my face right now. In the 3 years I've had Jax I have just now finally hit my breaking point. I think thats pretty good, three years is a long time and a lot of crap has happened in that three years. I woke up yesterday with major sinus stuffiness. So that knocked me further down. I literally don't have the energy to walk up or down the stairs. I got into my doctor, but not until the end of September, at least I made the appointment. Huge step for me. I'm trying. I just want my energy back, it makes me crazy to be so weak, because I know I have so much to do.
We are going to Park City for the weekend. I'm hoping this will help. No homework, no appointments. We will be playing with Michelle and Preslie all weekend and enjoying the mountains. I just hope I have the energy to play.
Again thank you all for your prayers and your listening ears.