Being admitted

We are being admitted tomorrow morning, a day early. Its just too difficult to try and accomplish everything we need to the day of the cath. Last night I had to put a mask of 5 liters on Jax. I didn't even know I had a mask, good thing I did. My ped wanted me to go in tonight, but they won't do anything this late so let me sleep in my bed one more night. Or at least be in my house, probably not asleep, since Jax won't let me do that.
Tomorrow ENT will come up to his room and scope his airway. The first thing to solving this puzzle. Then we have to decide if they are going to tap those effusions when they do the cath or not. I didn't want to go in early, but the more I think about it, it's a good idea. Depending on who the attending doctor is. Its better because I can discuss all of my concerns before things start. Like putting in a central line, expecially if they put chest tubes in. If its chylus fluid then they have to start a fat free diet. Well, you can't put a kid on an all fat diet on a no fat diet. So what they have to do is stop feeds and do TPN and lipids. You have to have a central line for that. I have absolutely no idea how long this stay will be. Maybe a couple of day, could even be a couple of weeks. One of my huge worries is his respitory status is so bad, he may be intubated for a while after surgery. My other worry is they are going to take one look at his airway and want to trach him. Yikes.
There are computers at the hospital and Ray is bringing up the laptop on Friday, the day of surgery so I can keep you updated. I'm very happy that Michelle is coming up Friday to hold my hand too. Please keep my naughty munchkin in your prayers the next few days, they could be lifechanging.