Sunday, March 6, 2011

Its been a busy weekend. Only two weeks before daddy starts working in California and I become a single mom for a few months! The IRS finally says they've received our return, so we are just hoping it comes this Friday or next Friday so we can drive daddy down to Cali and go to the big birthday bash!
Jaxson has been having more seizures the last couple weeks. What worries me is these aren't just quick startle seizures or his eye seizures. These are seizures that last a minute or longer. These are the seizures that we had a hard time controlling and eventually led to status. So Thursday we have an EEG and the following Monday an appointment with neuro. We need to get these controlled, if he goes into status again, there will be nothing that we can do. A pentabarb coma is out of the question as it almost took his life last time! He has also been super junky the last couple of days, but it has yet to turn into a respiratory virus. Sometimes I just wish he wasn't so complicated, that things could just be straight forward!
Friday was a beautiful day, and the boys didn't have school, so they were outside enjoying the sunshine. It was still too cool for the babies, but they didn't mind!


The babies are happy just staying inside and lovin on each other!



Saturday we had a fun Hopekids event. We had Hollywood connection all to ourselves. Rides, laser tag, and miniature golf.
I took Jaxson on the Merry go round, and I'm finding it more difficult to do these things with him as he gets bigger. Maybe if I would have rode on the horse behind him it would have been easier. He arches his back when you hold him upright, and he was trying to look at the lights. My arm was burning trying to hold him straight, as he's going up and down. Plus I had the oxygen tank on that arm. I should have put that on the floor! I only hope we can continue to include him in as much as we can when he gets bigger and harder to carry.


My Jonah was there, a treat for me as he is my favorite little boyfriend!


The boys LOVE miniature golf. They are so funny, they have no idea how to play right, but who cares, as long as they are having fun!


Jonah has the idea, just put the ball in with your hands! Duh people!

I tried to take Arina on the Merry go round. She was not having it! She enjoyed Disneyland so much, it surprised me that she was scared. I'm not sure if its because she was so stoic and quiet when we went to Disneyland, and now she has a personality, and an attitude to match!
She'd rather stay in mommy's arms and watch the horse move.

I would try to get her on and she would just dive back into my arms! Little stinker!

Tomorrow we take all 5 kids to the dentist at the same time. Wish me luck with that one!

14 comments:

Junior said...

Hope the seizures calm down for Jax as well as the lung gunk. Junior is always extra gunky this time of year.
Looks like the kids had a ball playing golf and on the carousel, such great pics

Jessica said...

Awe I love you Lacey! I had a lot of fun as I got to see you 2 times in a week! I love the pic of Jonah giving bones! Hahaha. He is so funny. Thanks for introducing me to Hopekids! My family had a lot of fun most of the time! I hope the EEG goes ok for jax, and you can get a better idea of what is going on with him.

April said...

looks like you had a wonderful time! Hooray!!

Scrappy quilter said...

So sorry to hear about Jax. I hope you can get it all straightened out before you leave. Looks like a fun weekend. Miniature golf is so fun. Enjoyed all the pictures. Hugs

The VW's said...

Cute pictures! Looks like lots of fun! Gavin would have been doing the same thing as Jax on the horses...except he probably would have been crying too! Lately, I've been thinking about how difficult it's going to be getting to do things with Gavin as he grows! I guess we need to think one day at a time!

Praying his lungs and seizures clear up! Hugs!!!

Mama Mason-Mann said...

I hope everything works out for Jax with his health (seizures and lungs). Poor mama needs a break! I love the pics of the two kids together smoochin' it up. and the golf pictures are great too. Glad you all got to enjoy yourselves.

Michelle said...

I read about Jax and his seizures and my heart breaks. Lillian has only had one, but it was awful. I cannot imagine how you feel everytime it happens. I will pray for him, specifically regarding his seizure activity.
I hope you still have hair on your head after a day at the dentist. ;)

Melissa said...

I hope you get some answers for Jax's seizures. And going to the dentist with all the kids? Good luck!!

Kristin said...

5 kids to the dentist - you're a brave mama!

Holly said...

Look at Arina standing! what a big girl!
and I hope everything turns out okay for Jax this week with all his appts...yucky...

Angi said...

5 kids at the dentist ?? YOU ARE NUTS !!!! (I mean that in the nicest way) Hope Jax gets handle on the seizures:-(

Shelly Turpin said...

The pictures looked like so much fun. Arina makes me laugh! Now Jax - we can't have this. Hoping they can figure something out quick!

ANewKindOfPerfect said...

I hope the EEG and neuro give you some answers. I hate seizures, and the thought of Jax going into status is terrifying. Arina definitely has more personality now than when we saw her. She was very stoic and serious, now she is a smiling, giggling, princess! I cannot WAIT to see her and all of you again.
Praying that your refund comes in time for you all to make Ella's party!

Zoey's mom said...

Up until this last time on the merry go round down at Cait's,Zoey has like nothing in motion ... including the tram at Disneyland!Give her time ... she'll come around.

Loving all the pictures,especially of my boyfriend Jax,but am not loving his being naughty.. hoping an EEG yields answers.

REALLY loving the fact that you will be here permanently before long.Hard to believe.I know you and Ray are getting nervous.I can only imagine but we will say our prayers and the rest will fall into place.