Jaxsons Fight

See this gorgeous boy, he is not as sweet and innocent as he looks! Oh no, not this boy!!

This boy is trying to make me as crazy as possible before I take him on a 4 hour plane ride across the country!
You know we've been having problems changing his trach because he has a lot of tissue around the hole, and the hole seems smaller. Today when I changed his trach, he did his normal panic, turn blue, because mommy can't get that trach in fast enough. But today, even after I got the trach in, his color didn't come back.
In fact, it got worse, as he was starting to lose consciousness, I grabbed my ampu-bag out of his closet. Something we've had since he was born, but fortunately have never had to use! Something you should only need in the hospital. You know, the thing that is by every childs bed in the PICU, and is in a bag in every room in the hospital, just in case. We have one in our sons closet, just in case!
I cranked the oxygen up to 10, and bagged my baby back.
I never had a chance to put his pulse ox on, I couldn't take the time to do that, so I don't know what his oxygen levels actually were. Or his heart rate. But I'm kind of glad I couldn't see that, because I'm sure they were not pretty!
Oh I'm ever so thankful for my training! Particularly my pediatric training. My ability to not panic, and know exactly what to do, was from 4 years working with very sick children.

Yesterday when I was up at the hospital getting Arina's swallow study done, I ran into an old friend I used to work with. We started talking. I was asking her how work had been, any super sick heart babies right now, etc. We joked about a little girl that was one of my first patients. I had seen her and her mom in the store the other day. She is now 7, and healthy! She was one that nurses hated having. You just never knew if this little girl was going to code on you, or you were going to be calling doctors, and running her to the PICU! Then my friend laughed at me and said, your son is the same way!
That made me think for a minute. My son was one that nurses loved, but he made them extremely uncomfortable! You just never knew what he was going to pull. Just ask daddy, or auntie Boo, both got to experience that when Jax was trached. Nurses running in his room, bagging my son back, debating on if they should push that little blue button! One nurse was my good friend, and there she was, working on my son. Ray said he'd never seen her move so fast in his life! Because usually he is talking to her about In and Out Burger, or California, because they are both from there. But not that night!

We have less than a week before we leave on our Make a Wish trip. Oh I'm so excited for Jax, but so worried at the same time. I question if its a good idea taking him. I don't want to be 30,000 feet in the air and have a crisis! My ped told me we were going to have to turn his oxygen up, because of the altitude. That makes me nervous! Not good for a momma that's a nervous flyer already!
But again, we have to live, Jaxson has to live, and he deserves the world on a silver platter.

Oh the fun we are going to have, and Jax is going to behave! If not, there is a childrens hospital close, and I hear they have Disney rooms, perfect for our Mickey lover! Jaxson and Arina are ready to go, with these to die for outfits from Sarah!