Time for some changes....maybe!

He sleeps like his mama!!

I talked to the trach/vent respiratory therapist today. Man I'm glad I did! I told my ped that I guess we were going to wait until Jax was deathly ill in the PICU before we look closer at his lungs. She said she didn't want to do that. Well no one is doing anything! If I don't bring it up, it doesn't get discussed. When I talked to Kris today (the trach/vent therapist) She said we need to admit him for one or two nights, and tweak the vent while watching him. That way we can maximize what it does for him. Unfortunately that won't be enough to solve this lung problem, its far worse than just not utilizing the vent. She told me that waiting until he is so sick in the PICU is ridiculous! That she is all about being pro-active. She is my kind of women. And to think, a mama and a respiratory therapist think better than the doctors! I also told her I was thinking of getting a second opinion from a different pulmo. Please remember, I love my pulmo, but someone else might be able to think of something we aren't doing. She gave me two that she really liked, and we will get with the one that has the earliest opening.
The only thing bad about admitting him is I hate to throw him into the lions den by putting him into the hospital in the middle of respiratory season. But we can't wait, we can't wait for him to get sick first. The other bad part is they only have one trach/vent pod. So he could be with other trachs that are there for a respiratory virus. They will probably put him on reverse precautions. Anyone coming into his room has to glove and mask to protect him from their germs. I'll be making a new handwashing sign for his door as well. Yep, you better believe it!
I really hope we can get some more info. Lord knows we can't leave his lungs in this condition!

I'm feeling that I may need to change the blog a bit. I started this blog for Jaxson, to put on paper (so to speak) all of his trials and triumphs. Now that we have another special needs in our home, I'm not sure if I should change the blog or not. I don't want to get away from why I started it in the first place. I also hate to change it and confuse people that may think we are gone if we change the title. Plus this has basically been our family blog as well, we put everything on here that happens in our home. What should I do? Should I leave it or change it?

I am also going to add some tabs at the top, now that I know how to do it! I am going to put a question and answer. I get tons of questions in comments, and I can't answer them all. I was thinking of doing a Q&A post like Renee, but I think this will be better. If you ask me a question, look in the Q&A tab for my answer. I'm also going to do a tab for Jaxsons story. I love it when I go to a new blog and they have a tab that I can go to and read the childs whole history and get up to date. I have no idea how long it will take me to do these, I have to find time to sit at the computer for a while and do it. Things might be quirky for a while, so bear with me!