Our DS community has been rocked!

Your going to read this on everyones blog for a while. Our Down syndrome community has been devastated!
Sweet Carly passed away today, so sudden, no one yet knows why. All we know is this sweet girl has been healthy for years now, and went to school yesterday!
Heather called me today and we just sat in stunned silence, wondering if what we were reading was correct. We reflected on how just having that extra chromosome makes them fragile! Even if they have absolutely no medical problems, it can happen in an instant.
No more am I going to mull over how long Jax is going to live, or that his life expectancy has been shortened by all his medical problems.

It just doesn't matter, it can happen that fast. That extra chromosome has made our kids stubborn, made them able to tolerate so much. It makes them glow with something that can't be described unless you've witnessed it. It gives them the ability to know when someone is sad and needs a hug or a smile. But that extra chromosome also makes them so fragile!
I'm still in shock. Shock that I wont see that sweet face and gorgeous hair anymore.

It is indeed a sad day in our Down syndrome community. Hug your DS child tighter, live every day as it comes, and pray for this sweet family that has had such a sudden loss of their beautiful daughter.