Trading idea's

I always get such great idea's from other moms with medical kids. So I thought I would share one of my travel idea's since I've pulled it out for my trip.

I bought an actual tackle box (I still need to cover up the ugly fish on the front.) But I use the plastic bins inside to store all of Jax medical garb. And I put his extra cannulas, feeding bags, and cords in the bottom.

The plastic bins hold everything. And you can make them different sizes for what you need. Here are Jax's.

I kind of feel like I'm losing my mind. I feel like I have so much to do but when I go to do it I just stand there like a complete idiot. We got a cargo holder for our car and I still don't feel like I'm going to have enough room for all of Jax stuff. I have a small concentrator, 5 oxygen tanks, his bag of feeding supplies, bag of medical supplies, his suitcase, his suction machine, his pulse oximeter. Ahh

Tomorrow he is having a CT of his head done. To see if the ventricles are enlarged. If they are, it will make surgery a little more urgent because its causing pressure in the brain. I'm going on vacation, so it will have to be when we get back. And I guess it will be discussed in the conference with the surgeons this Wednsday. Wow, maybe his cardiologist is finally getting the picture that we are not giving up on our baby, and we want his problems fixed. It would be nice to have an answer before we go. So we are not on pins and needles while we are gone. Keep your fingers crossed for answers.

A cute pic of Jax I just had to throw in.