Quick update.

My friends, its been a long couple of days. Tonight I'm going to sit down and get caught up on all of your blogs.
Thursday night was the worst night yet, Friday morning left me beyond exhausted and waving the white flag. Waving with both hands, frantically. I give up, I guess I can't do it all like I think I can. I was in a horrible mood Friday morning, but had to much to do to stop. I was meeting friends for brunch, and I had to take Jax with me. He coughed all morning and I knew brunch with him would be bad. But he actually did ok. Our friend Becky, who's here from New Hampshire. A blog friend we met. Held him and the spoiled boy slept the whole time. Then I had to get home to get the boys from school. Then I had to head up to the hospital to see sweet Preslie, who had just had her tonsils and adnoids removed. She's doing quite well, and hopefully will head home today. Friday night we planned on going to the Festival of trees, (even though we didn't get our tree done) but the place was so packed that we said no way.
I talked to the trach RT on the way to brunch about his coughing and when I suction him, I feel like I'm hitting something, and then he coughs like crazy. She thinks he has scar tissue at the bottom of his trach. So we need to get in immediatly to the ENT. If it gets too bad we go the ER but thats definitely a last resort as I don't want to sit around sick kids.
So I've finally decided that we will do night nursing two nights a week and a day nurse the other two days. At least on the days the night nurse is here I can take a sleep aid and hopefully get a good nights sleep.
Jax actually slept all night last night. I got up once for an alarm, he dropped his sats for a minute, and I still wake up groggy. And this morning I also woke up feeling stuffy and gross. Ugh, I so don't need this during this busy season. Today we are going early to attempt the Festival of Trees. again. We'll see.