Jaxson continues to do well. They took the vent off about an hour ago, and he just has the mask. The only thing I hate about the mask is it moves all over when he moves, so it will get off the trach and he will desat. Also its harder to tell how much oxygen he's on because its a percentage, kind of like the vent. So he's on 50 % right now. We'll get him on a nose with normal oxygen before he comes home. We don't start our trach teaching until Monday because of the weekend, and they should change out his trach on Sunday. They have his hands tied right now so when he's awake that makes him mad. Hopefully soon we can take the restraints off. You know how much he loves his hands by his face.
1 month ago
16 comments:
Lacey, I'm new to following Jaxon's blog. I have a 9 mos old son with DS and many medical issues to go with it. Just wanted you to know that now one more person is praying for your family.
Glad to hear he is off the vent and doing well.
Still praying!
Glad to hear things are going well. Better to be restrained than pull out the trach. Poor little man. If Steve is ever home long enough, I'll leave the kiddos with him and come up and say hi.
Prayers coming.Thanks for the update!
Glad to hear things are looking better! Sending hugs!
Thank you for the updates!
So happy and relieved to hear Jax is doing well. What a beautiful little face he has....and no more stickies on his cheeks - yay! Hugs to you all!
So glad that all has gone so well Lacey! Will continue to pray for a continued speedy recovery process!
I'm so glad he's doing well and the surgery went well. He'll be home in no time.
He looks really good Lacey, I'm so glad. I have prayed and prayed for you guys, love you Jax!
So happy to hear all is well. Ay yi yi about those hands being tied...I'll bet he is one wriggly boy!
Glad to read he is doing well. Give him big loves from me and Lily!
What a trooper...he looks amazing for all he's going through. How are YOU holding up?
Glad to hear that he is off the vent and doing well! Poor little man, that they have his hands tied down! It always makes me sad to see Gavin like this. But, sometimes it's necessary. I pray that he continues to do well and that trach training goes well for you! Thanks for the update! I'll be thinking of you and praying! HUGS!
Awww I am so sad that his hands are being restrained I am sure he doesn't understand why. But I am glad he is off the vent and that he is doing well. Prayers your way.
Lacey, I'm thinking of you. I also have quite a few trach supplies that I would like to ship to you if you are interested. We just need to see if they are the same items you can use, sizes and stuff like that.
Glad to hear all is still going well. What is poor Jaxson going to do when he doesn't have a cannula to pull out of his nose? That seems to be his very best past time. Love you guys - still lots of prayers!
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