Still here

Well, no home for us today either, he had another horrible night. I'm staying up here tonight so I can keep things in check and get us home tomorrow. He spiked a fever last night, but I think he just worked himself up. His temperature gauge in his body is broken, and he can work himself into a fever. He hasn't had one since. They also did a contrast study to see if he has a bowel obstruction, he is not tolerating feeds and having a lot out of his stomach. No obstruction, just his unbelievably slow bowels. When he has surgery his bowels just quit working for a while. If you remember when he had his cecostomy in June, he was cranky for a month and we wondered if we had done the right thing. I think we just need to get home, in his own bed. It will be hard for a few weeks, dealing with the crankys, but I'd rather deal with it at home. Jaxson will never be super healthy, and he'll always keep the doctors stumped. We could be here forever while they try to figure him out.
I love the attending we've had this week. He's never had Jax before, and he told me today that having him is very humbling. It makes him love his job more. I get that a lot from doctors lately, they shake their head when they hear his history, and are amazed at his strength. Me too, my little superbaby.