No relief in sight!

Well that was one of the most unproductive appointments ever! First of all, the ENT's here are known for their extremely slow clinic. Its an all day event to go there and back, and its a lot of sitting in the waiting room. Good thing about sitting though, we saw Bugg! A new blog friend that lives close by! So me and his mommy had a nice chat.
But basically the results are that there is nothing that can be done. He just needs to grow and get bigger..
Grow...
Jax...
Yeah, he hasn't grown in the last 3 years. My boy with the deceiving fat cheeks caused by his SVC syndrome. The surgery is to fix the narrow part of his airway, there is no surgery to fix tracheal malaysia. If tracheal malasyia is bad they trach them. Well he's already trached. His airway is hitting the trach, causing him to cough, the more he coughs, the more the airway flops, and on and on and on! They can do lidocaine in a neb to make the airway numb and help the cough, but thats not something you can do all the time. The ENT was pulling other things out of his butt to try. Like making the trach wider, pushing more on the airway and keeping it open. Both the lidocaine and the bigger trach will make his voice nonexistant. Nice! We haven't even been able to figure out how to talk around these trachs yet. Well the trach nurse went to put the bigger trach in and it didn't want to go in. The whole time she's pushing, he's not breathing, she finally gets it in and causes him to bleed like a siv! Blood is pouring out of his trach and his mouth! She's suctioning his mouth and I'm using my suction to suction out his trach. This whole time he's not breathing!

"sigh"

So now we are home, with nothing to fix this hacking cough. We got him cleaned up and in a fresh shirt and he was out for the count. Rough day!