Queen of destruction!

*To anonymous that just left the comment. I know what you mean! Even as the mom of two special needs children, sometimes I even offend people! Everyone is so different in what they see as mean. Even if someone said something to me that I didn't really like, unless it was blatantly mean, I just smile and ignore it! But I know what you are saying my friend!*

I think our princess has graduated from that title to queen! In all areas. We call her the queen of destruction, and also the queen of cuteness. This girl is a serious crack up! I really need to get that video camera charged!

See that smile? That's my, "I'm to cute to get in trouble for dumping all these extra supplies out on the floor!"

She love's my closet mirror in my bathroom. She thinks that cute girl staring back at her is such fun!

Cheese!
Who's got the bigger budha belly?

Oh, she's still looking at me!

We had Jaxson's cardiology appointment Wednesday. Man it was the longest day yet! Since she's never seen him, she wanted EVERYTHING! X-ray, echo, EKG, you name it! She was fantastic. But again, I searched for a good cardiologist, so I knew she would be great.

The best news, his echo looks the best it has in a long time! Still shows his VSD, his heart is still enlarged, but....drumroll please! His pressures are near normal!!

Not even kidding, moving to sea level has not only helped his saturations, but his overall heart function.

She did agree with me that its obvious that he still doesn't get good venous return to his heart, because his upper body is still puffy compared to his skinny legs. Also his EKG still show right ventricular hypertrophy, but that's expected in a kid with as many pressure problems as he's had. She didn't like when I told her how the slightest thing causes such heart failure, requiring IV heart medications to keep his heart pumping like it should and keep his blood pressure up. She doesn't want to wait 6 months to see him again, so we go back in 3 months. Overall I couldn't have asked for better news at this appointment!

I guess he's really chillaxin!!