The loony bin!

Still haven't had a chance to check on my friends, so I am hoping everyone is doing good!

Jaxson is going to send me straight to the loony bin! Along with the typical increased seizure's, Monday he had a big retching episode. An episode that led to aspiration. It was a mild aspiration, but that doesn't matter. Yesterday he continued to retch and gag more. 3 days of no poop, even with his suppository. Last night after I put him to bed, sound asleep, he had 5 or 6 more episodes of severe retching. Every time he would desat, and I would hold my breath, praying he didn't just have a huge aspiration. Then he would slowly come back up again. Finally, after zofran, I stopped his feeds and started pedialyte. His heartrate was sky high, even after he fell back to sleep. I had a strong feeling we were heading to the ER. After I started the pedialyte, he finally slept ok. He woke up this morning ok. Sats were a tad lower than normal, again, I think microaspiration. He just doesn't have anything in his stomach to have a big aspiration. Since he didn't have any big retching episodes, I started his feeds normally. He has been ok today.

What the heck?? Why was he retching so much, and now is fine? He is making me crazy! And now, instead of not sleeping, he is sleeping constantly! Only a couple hours after waking up, he was back to sleep. He woke up, and has only been up for a couple hours again.
My ped wants me to do a big enema, he thinks he is backed up. He also says GI needs to get to the bottom of the not pooping issue. That using suppositories makes them dependent.
Well duh! I knew that, but he has to poop, and since he doesn't, I have to make him go somehow!
The only good news is I got into the keto diet team on the 6th of March. I wasn't expecting it to be so soon. I still haven't heard of an admit date for the VEEG. I'm hoping that since his keto appointment is so soon, maybe we can just do the admits together, and try to get these seizures under control!
Since things happen in 3's, here's a couple more.
I took Carter in to the ped. In the past few months, he has gained a huge amount of weight. This is in my son that plays sports, and is outside playing every second of every day. I have a feeling something else is causing the gain. He weighed 83, and just two months ago he weighed 72. From October, when he weighed 67, and was in the 50% percentile, to February, where he's now in the 85% percentile. That is a huge jump! She ordered tons of bloodwork, including thyroid tests. I'm praying something shows up, because there is no other reason he has gained this much weight!

We've also noticed that Arina seems to limp a little, mostly in her right leg, when she walks. I've also noticed that sometimes when she falls on her leg funny, she cries in pain. Usually, again, the right leg. I'm wondering if she has hip dysplasia, and her hip is popping in and out. I have zero experience with this, so I'm thinking a trip to the ped is in order for her also!

Whew, I need things to calm down a bit around here so I can breathe!
Until then, some more pics of our San Diego trip.