Jaxson seems to be slowly improving. He's tolerating the vent and sleeping better at night. He didn't gag or wretch at all yesterday. So now I just need to decide when its time to try feeding into his belly instead of his intestines. We'll stick with continuous for a while of course, his belly hasn't had anything in it for a long time, so it needs time to get used to food.
We've had a lot of reminders of just how fragile he will always be. Once I landed in Ukraine, I couldn't believe I had let myself go so far away from him. Auntie Boo asked me the other day why was he taking so long to recover from this tummy bug. His body is just so sick and tired. It takes all of his energy just to function normally. You throw something nasty in there and everything just shuts down. I was reading a heart baby's blog that I found this morning. This sweet baby passed away a short time ago. Man it was hard to read, it makes everything such a reality. She talked about his whole life being spent in a hospital, being poked and prodded. It made me realize that Jax his home, but he still spends his life being poked and prodded. Twice a day he's poked, he has air forced into his lungs so he can breathe. We really do run a mini PICU in our home.
I'm just so grateful for the spunk and fight that my little boy continues to have. He wants to see his baby sister!
We went to the pumpkin patch over the weekend. Jax did what he does best, slept through the whole trip! We picked a pumpkin for Arina, since she couldn't come with us. I also just bought her's and Jax coordinating Halloween costumes. Oh its going to be so cute! You'll have to wait and see pictures, lets just say its definitely a Rugg family favorite!
13 comments:
Just wondering if you have a double stroller for Arina and Jax so you can push them both? Can't wait to see them I think a Mickey and Minnie Mouse coustume would be so cute on them..
Ah just love pumpkin pics.... cant wait to see the costumes
Pumpkin patches are so much fun! Looks like you are having warm weather to enjoy Fall too!
I was guessing Mickey and Minnie too! That will be so cute!
Hope Jax is feeling better soon! Hugs!!!
Hey....I like your shirt :) I have some mediums left, do you think any of the boys would want one? Glad to see you guys out and about....soon there will be another stroller in the mix :) I have a REALLY good guess at what their costumes might be!!
SO glad he was feeling up to going out even if he slept the whole time. Looks like a fun family outing.
I love Halloween! Im excited to see which Disney charecter she will be, assuming you are doing disney!!!
Hope you are doing well, I will give you a call this week at soempoint to catch up. I miss jaxson!
I don't know where you live, but WOW those mountains are beautiful! I'm so glad he's feeling better!
sweet Jax - this post makes me so sad. We spent all day at TCH and Bella was so tired of it. She kept telling us no with her head.
Glad y'all got pumpkins - can't wait to see Arina home and active with y'all. How goes Grandpa's passport?
Lacey - great pictures. What a breathe-taking view. Prays continue for you, Jaxson and Arina. - Maureen C.
So glad you were able to get out and enjoy the pumpkin farm. I can't imagine how excited you must be to share this Halloween with both Jax and Arina! Praying for the time to pass quickly till she gets to come home.
Oh I can't wait to see the costumes. We can definitely relate to having a mini hospital in the home.=)
Hey. Who is your ENT? And do you love him? Have you any experience with Muntz?
Glad to see you and Jax out and about. I hope to get to the pumpkin patch this weekend with Claire.
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