Thursday, October 28, 2010

The puffy face is back!


Its clear from these pics that Jax face is getting huge again. Look how his trach tie is almost invisible under the puffiness. I started noticing a real difference a few days ago. Yesterday he was up to 24 lbs! His normal is in the 22 range. Thats a huge difference. But the reason I'm worried is because its only in his face, neck, and upper chest. Thats his SVC again. His legs are fine, and his feet are fine. She checked his albumen, because he's had problems with that being low and causing puffiness. But his albumen is just a tad low, not low enough to cause the puffiness. She also wanted to check his level of his lovenox in his blood. If its too low, he could be clotting. They were not able to get that level, they poked him 3 times, and only got enough for the albumen. So we wait for cardiology and hematology to call with their opinions on where to go from here! Yikes!

Jax new jammies of the night.

Buzz Lightyear to the rescue!!


He loves Buzz lightyear. Look at his face on the ride. All smiles, and he was loving the bright lights!
Tons of stimulation!


16 comments:

ParkerMama said...

What an absolute prince you have. Lovin' the pictures. Keep us in the loop as to what everyone says.

Keeping YOU guys in our prayers.

Tammy and Parker
www.prayingforparker.com

Zoey's mom said...

Lacey,what the heck is going on with that boy??He does indeed look puffy.Cute in his jammies but definitely puffy.Hope you get to the bottom of it.soon.


Are you getting SOOOOO excited????

Anonymous said...

Jax is the cutest thing!:)SOrry he's puffy again:(

stephanie said...

Oh Lacey. i don't even know what to say. i just want Jax to feel good.
Sending prayers. That's about all I can do.

The VW's said...

AWW...Jax this is not good! Praying everyone can figure you out sweet boy! You sure love to keep everyone guessing! You look extra handsome in your Buzz PJ's!!! Praying for you! Big Hugs!!

April said...

Oh he is so precious. Hope you find the answers you need for his puffy little face!

Corinne Judy Smith said...

Cute jammies! Your poor little guy! I hope you can find some answers to the puffiness. At least he seems in good spirits in the pictures.

Suzie said...

Hang in there Jax baby! Love your jammies!

Heather said...

No more puffy-face, Mr. Jax. Time to get better! You need to be feeling good for when your sister comes home!

Shonda said...

Poor puffy little guy, but so gosh darn cute. :) Hope they get back with you soon. Praying from TX for Mr. Jax!

Can't wait to see pics with his baby sister. :)

Becca said...

Oh, I hope everything's okay. Poor little guy can't catch a break. :-( Other than the fact that he somehow seems to get cuter and cuter every day!!! Love the jammies!

Shelly Turpin said...

oh Lacey - that doesn't look good at all! I hope they can come up with something - and soon! Kiss him for me.

Cammie Heflin said...

Oh, Jax poor thing! He is definitely very puffy!!! Praying you find answers soon!

Michelle and Sean said...

Oh no, he does look puffy!! I hope things can get figured out to see if there is something to help him!!

We have Daftary for pulmo. We haven't seen him yet. The one bacteria that is worse and causing the pneumonia doesn't respond to tobi so we are going to try something else for that and then possibly go on the tobi for the other bacteria. I'm not sure what the deal is with the tobi, they just don't want her on it continuously. Not sure why though. I mentioned a little while ago about how you guys go on it for the two weeks and then back off and they just said they don't want to do that with Maggie. I don't know I think I will make an appt with pulmo again and rediscuss this and then if they aren't understanding I will give your pulmo a try!!

ANewKindOfPerfect said...

Little Man, I don't know what's going on but you need to de-puff and quick! You are worrying your mama.

Lacey, he looks adorable as always. Love the Buzz jammies. I cannot BELIEVE you are so close to having a DAUGHTER in your house. She's almost here!!!

Melissa M said...

I love the jammies and I hope you get the meds worked out for Jax!