Happy New Year

Happy New Year to everyone!!
Looking forward to this year and hoping it brings less hospital stays and surgeries than 2009. We've been looking for a chair to put in Jaxson's room so we can start having a night nurse. We looked at all the stores, and couldn't find anything. I went on KSL.com, which is our local classifieds, found me a chair for 50 bucks. I was so excited that I decided to look for cribs. Jax really needs a whole new bedroom set. The crib is seriously 11 years old, and you have to move his dresser carefully or the top will come off. I found a crib on there too! It was the exact one I just looked at the RC Willey outlet for 199, I got it in perfect condition for 100! So I guess this year I'm going to be a deal finder. I thought I already was but I'm on a roll and its only the first day of 2010!
We are also having so much fun playing with daddy's new camera. You can finally see what color Jax eyes are instead of black. I love this picture because he is looking at the lights, and you can see it reflecting in his eyes. His vision is very poor, but lights is alway where his eyes go because he can see them.

We actually made it to midnight last night. Should have gone to bed early though, because Jax coughed all night! Neither me or Ray got much sleep. So the one thing I hate about the trach....when he wakes up in the middle of the night, I can't just let him play in there until he goes back to sleep, he needs to be suctioned. So we've gotten a lot less sleep since the trach, thats why we are going with the night nursing. But I also just found out our insurance only pays for nursing for 90 days, then they expect medicaid to kick in. Well he is on the waiting list for the Travis C waiver, but he's number 20, so they told me it could be up to a year. My case manager said he should qualify for medicaid because of his medical need, but when I applied for it he was denied because we make to much. I don't know who to go through, but I think he should qualify for some nursing time, don't ya think?
He still has this cold, his oxygen needs are still up a little, but he's ok. He loves hanging out with his big brother that takes such good care of him!

Oh and also, if anyone knows Rebecca from Rebecca creates (she does blogs) we are ready for a new blog, but when I click on her button it takes me to a wierd site. If anyone knows how to get a hold of her I would really appreciate it.