Still home

This is so wierd. I still don't think this is RSV. He is not needing suctioning. He's been more snotty with small colds than this. So then why is he still needing 1 liter of oxygen? That could even be heart failure. Oh God, praying thats not what it is. I haven't been able to get him off the 1 liter for 3 days. We may have to do another chest x-ray and see what that shows.

The only thing that makes it sound like a cold is he is coughing. And my doc said he's swallowing a ton of air when he coughs and thats why his belly is big and why he is gagging and wretching. He still didn't sleep last night. I think I'm getting used to no sleep because I'm not even tired anymore.

But look what came in the mail yesterday.

I enlarged it so you can read it.

We always wear matching t-shirts when we go to Disneyland or other parks so we can find each other. We thought why not raise awarness while we are at it. We had these made at cafepress.com. That is a great site. They have down syndrome shirts and autism shirts that we are going to order as well. The other boys shirts say My brother was born with CHD, and ours say son. Isn't it cute?

Oh and also, we just changed feeding pumps. I have 7 bags left over from my other pump. I know there a lot of you that have that pump, and I don't have a lot of bags left. So maybe the first person to message me I will send you the bags. Its a 5oo ml bags for the Zevex Infinity pump. So let me know, I have gathered so much crap that I can't send back and I can't use. Its filling Jax room up.