tag:blogger.com,1999:blog-2212485478080287079.post1825121839895118836..comments2023-08-28T03:10:39.279-06:00Comments on Jaxsons Fight: Still homeLaceyhttp://www.blogger.com/profile/03321275110857561824noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-2212485478080287079.post-75968036186018487492009-02-25T00:03:00.000-07:002009-02-25T00:03:00.000-07:00Hello dear Lacey, Even though we have only met via...Hello dear Lacey, Even though we have only met via cyber space and we hardly know each other - I feel like jumping on a plane and coming to give you a big hug! Please know that you and Jaxson continue to be in my prayers and thoughts.... I hope you and Jaxson can get some sleep today and that he starts to feel better! I love the shirts idea, as you know I have a nephew who is 2 and 1/2 who has survived cancer and now has autism - would love to get some t-shirts.... Thanks for the awareness - we have none in South Africa... Okay let me run and I will check in later with you! Keep Strong! Megan and KeatonConrad, Megan and Our Precious Keatonhttps://www.blogger.com/profile/03179201068525011071noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-80858396416213927192009-02-24T21:34:00.000-07:002009-02-24T21:34:00.000-07:00Lacey I love the shirts! He is one lucky guy! Isn'...Lacey I love the shirts! He is one lucky guy! Isn't it just amazing how little sleep we can get and still function? I hope things take a turn for the better fast. Poor guy. All that O2 what is going on with him? Oh and I don't blame you for wanting to stay at home. To think that our Ava was really supposed to be in the hospital the whole 7 months....not happeneing here. We always knew just like you the signs to look for. If an ambulance call was needed we knew the number!;) It is so much better in your own home. Praying for JAxson and you all.<BR/><BR/>"God help this wonderful family get over this sickness. This little man has had one thing after another, Lord. He needs some rest and some better days. We know you are right there holding Jaxson every second. Help Lacey too as this is so hard on us Mom's. We do it because we just do. Give them all the strength to face what lies ahead. In Your name, Amen."<BR/><BR/>Prayers always!<BR/><BR/>~Terri and AvaHope for congenital diaphragmatic herniahttps://www.blogger.com/profile/02815771123190989855noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-66387816233986960132009-02-24T20:02:00.000-07:002009-02-24T20:02:00.000-07:00I will continue to pray that he gets better and yo...I will continue to pray that he gets better and you can lower his oxygen! I know that has to be frustrating!<BR/><BR/>LOVE THE T-SHIRTS! What a cute idea!<BR/><BR/>Hugs - TiffanyBaylee and Blair's pagehttps://www.blogger.com/profile/07362201977840208654noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-27742983690127695082009-02-24T19:01:00.000-07:002009-02-24T19:01:00.000-07:00Lacey, I can totally understand the concern ab...Lacey,<BR/> I can totally understand the concern about heart failure! We found out that the last trip to the hospital was a result of him being in heart failure. Its a never ending process. <BR/> I LOVE the shirts! I was looking for some online and had trouble finding them. I will have to check that site out! <BR/> Still hoping you get some sleep maybe things will settle down and Jax will start to feel better. We will continue to pray and hope that Jax can go down on his oxygen!<BR/>--ErinBlessed with Boyshttps://www.blogger.com/profile/04764109747087733076noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-24387877711269414542009-02-24T17:13:00.000-07:002009-02-24T17:13:00.000-07:00THANKS LACEY, That is so cool!! I Really Hope tha...THANKS LACEY, That is so cool!! I Really Hope that they pick us, I would feel so honored!!!<BR/>Love & hugs!Melissahttps://www.blogger.com/profile/02836918583076227118noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-47398776815840354712009-02-24T14:09:00.000-07:002009-02-24T14:09:00.000-07:00Praying that Jax feels better soon!! HUGS!Praying that Jax feels better soon!! HUGS!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-15847668771227369812009-02-24T12:01:00.000-07:002009-02-24T12:01:00.000-07:00God Lacey, I'm so sorry that he still needs so...God Lacey, I'm so sorry that he still needs so much oxygen? I'm so anxious to hear what's going on??? Is this really RSV?<BR/><BR/>THANK YOU SO MUCH for sending Dillon his blanky...YOU ARE TOO MUCH! You should not have done that with everything you have going on! Dillon is going to be so excited!!<BR/>I love the TSHIRTS...SO CUTE!<BR/>Love & hugs from Dillon & I!!!Melissahttps://www.blogger.com/profile/02836918583076227118noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-1069722070271794452009-02-24T10:44:00.000-07:002009-02-24T10:44:00.000-07:00Hoping today that Jax begins to turn a corner.I am...Hoping today that Jax begins to turn a corner.I am sure he has just gotten hit harder by all the junk flying around.His body is so much more prone to it and it is so much more difficult for him to kick it.I love the t-shirts Lacey.Great idea.Praying for a better day for the little sweetie.Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-48503215260119839442009-02-24T09:54:00.000-07:002009-02-24T09:54:00.000-07:00Lacey, the bags are by Viasys Healthcare and are c...Lacey, the bags are by Viasys Healthcare and are called Farrell Valve Enteral Gastric Pressure Relief System.Juniorhttps://www.blogger.com/profile/03719754876592849914noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-54372842639651809262009-02-24T09:39:00.000-07:002009-02-24T09:39:00.000-07:00It is great to hear that you are still home, praye...It is great to hear that you are still home, prayers that Jaxson's oxygen needs will decrease. <BR/><BR/>Has he ever used the Farrell bags? They are for keeping the tummy vented and can even be used while on a feeding pump. Junior uses them at night when on his cpap because he swallows air.Juniorhttps://www.blogger.com/profile/03719754876592849914noreply@blogger.com