Q & A

Q. Do you think the fact she came from Russia is making it hard for her to speak English? I have no idea; maybe the orphanage she was in spoke English as the primary language or another language. If that's the case, I know that English is the hardest language to learn; perhaps it's a language barrier and she's still trying to learn? 
That a great question. I don't really think its the language. She was only 13 months when we brought her home. For the last 3 years she has only heard English. It was basically when she was a baby that she was spoken to in Russian. So no, I don't believe that is why she is struggling. 

Q. attach a bag to his g tube so it can vent and let the bile out whist feeding through the j. might not work but worth a try?
We are on the same thinking because that is indeed what we do when he is sleeping! His tummy has to vent or he will gag and vomit like nobodys business with all of that air being pushed in. I also keep his g tube extension on so that if he gags I can quickly open it up and let the pressure out!

Q. What is Jax Facebook page again?
https://www.facebook.com/Jaxsonsfight


Comments we love!

"Wow. That hurt me when I read it. Yes, it was a teachable moment but you shouldn't have to live your life around those while out with your sweet son. Your focus is obviously on all of his other special needs that are not being addressed at the moment. Like finding a caring qualified doctor who will listen and do what is in Jax best interest not what is in the interest of the doctor. You as a mom should not have to fight so darn hard for for child but I'm so glad he has you because apparently in this world people can't seem to do the right things so fighting is a necessary evil. He knows you will never give up on him. You love him dearly and that's very apparent. If only the rest of the world could see and understand that. Maybe it would be one less thing to worry about. One can only hope. Sending warm wishes to your family for the holidays!!"


"I'm a first year pediatric resident and I have been reading your blog for over a year.. I love hearing updates on your warrior boy! You guys are an awesome family and you are such a great mom! I had a patient the other day who reminded me so so much of Jax- and from reading your blog I took extra time- not focusing only on the medical stuff, but also on his sweet freckles and his love of (no other than...) Mickey Mouse! Thank you for sharing your story!"