The great Santa picture!

Since we've been a little behind getting ready for Christmas, we didn't get our Santa pic until yesterday! I'm glad we got it, because I think Jax is coming down with something. He is oozing junk, and although he does great on his vent, off his sats are mediocre and he coughs and coughs. Usually that means his airway is collapsing, making him cough. He tends to have a super long "dormant" period before he gets really sick, so I'm hoping we can make it through Christmas!

Pictures are not fun anymore with Arina. That girl doesn't sit still for 5 seconds, and I usually get frustrated and just say forget it! Jax is also not fun, although he is so photogenic, he doesn't look at the camera, his hands are always in his face, and he can't hold his head up. Its a complete disaster trying to take his picture.
So of course I was a little concerned about getting a good Santa picture. But thanks to our amazing photographer dad, that can snap in super speed, the very first picture is actually great! Then it all goes downhill from there!

Lift me up big guy!

Ta da! A decent picture! Although Jax eyes are about closed, this is as good as it gets!

Then Arina tries to climb down, I lift her back up

Jax hands are in his face

Then he loses his head control completely, and Arina spots the train and is signing "train"

There is about 30 more pics like these last three. This all happened in literally about 30 seconds! Super speed I tell you!
Merry Christmas to all of our friends, Love Jax and Arina!!