Deep breaths!

Deep breaths! In and out!

I'm wondering if the drive home was enough time for me to cool down before writing this post. I'm not so sure it was, but here it goes!
You know Jax had dental work scheduled today under anesthesia. The hospital called yesterday, did his whole pre-op checklist. Got meds, and history, gave me times he had to stop eating and what time to be there.
We checked in at 8:30, went through the whole routine, changed into our medical garb, talked to the NP, and she walked us back to the waiting room where the docs come talk to us before taking him back. I began to wonder if something was wrong because we sat in that waiting room for a LONG time. She came back multiple times to ask me questions. Did they tell me not to give him his lovenox this morning?
No
Does he get labs to check his levels because he's on blood thinners? Platelets, PT-PTT?
He gets platelets in his CBC's, but they don't routinely do PT-PTT. Along with his monthly CBC, he also gets an anti 10a level, which makes sure that he's on the right dose of lovenox.
Off she goes again.
Soon the anesthesiologist and dentist come back. He tells me that he called hemoc and his cardio. Hemoc was adamant that he should have not been given his lovenox this morning before the procedure.
No one told me that yesterday. I wasn't concerned about it either because he's not being cut open, usually the lovenox is ok if there is no incision.
But anesthesia says we are going to have to reschedule! That Jax was far too complicated, and he wasn't going to take the risk! We sat in that hospital for 3 hours, going over history with 2 different people before we were told this wasn't going to happen!

Do you know your son is extremely complicated?

Uh, ya! We live it every day!
Are his toes normally blue? And his legs this mottled?
Yes, he has horrible circulation.
Your saying his airway collapses even with the trach?!
Yes, yes, and yes again!!

Come on people! You've seen this child for 5 1/2 years now. You should be able to look up every snippet of information ever taken on him on your trusty computer.
Once again you have wasted my time, and made me feel your incompetent!
I'm not just saying this because I'm the mother of a medically complicated child, but I do indeed have a degree to work in this hospital, and actually did work there for four years! So I can safely say that its not rocket science!

I do like all these signs now telling me that moving is the right thing to do! That its no longer about wanting to be close to the beach, and that daddy wants to move back where he grew up. Its not even about moving so we don't have to deal with having a wheelchair bound child in the snow. My son needs better care.
And although we are still worried about where we'll live for the first little bit, I'm positive it will all work out. No one wants to rent month to month, and we want to buy as soon as possible, because rent will actually be a lot more for us than a house payment. We may end up in an extended stay for a bit, but it will all be worth it in the end.
My warrior has worked far too hard for us to continue giving him less than perfect care! Its not fair to him.