Pulmonology and safe kids!

Jax had his long awaited pulmo appointment today. It was very productive and not so productive at the same time! I know that sounds weird. I wanted her honest opinion since she had told me before that she thought his clotted off veins were causing major problems for his heart. My ped had told me that cardio had talked her into the aspiration theory. She, like me, still does not believe him aspirating is the major problem. She brought up a good point. If he was constantly aspirating enough to be damaging, he would be getting frequent pneumonia's. This is one reason she doesn't think the vest would do him much good. She doesn't have any more idea's on how to help his lungs, she has done everything she knows to do.
When I told her about the move to California, she did think the altitude would help his lungs. She said I would see his oxygen need go down. I told her that when we go there, his oxygen need usually stays the same. She said that was another clue that his heart is the problem. If it was only his lungs, his oxygen need should be better at sea level.
I found a good cardio at Childrens hospital Los Angeles, and just tonight found a team at UCLA that is working on clots in the pulmonary vascular system!! Bingo, thats exactly what his problem is, so I'm going to be giving them a call tomorrow!
So the appointment was good because I know pulmo is still on the same page as me, but not productive in that she doesn't know what else to do for him. She says "he's on the vent for crying out loud, I'm not sure what else we can do!"
She thinks he looks good, and I agree that he has been a good boy this winter. Its almost creepy that we haven't had a single cold in the house! Not even my other asthmatic's have been sick. Its so weird...good....but weird!

Saturday we took the boys to the safe kids fair. We are all getting stir crazy being stuck in the house all the time. It was free, which is appealing since we are impatiently waiting for our tax money to come and rebound us from Arina's adoption!
Its nice because it teaches the kids all about safety. Fire safety, bike safety, and best of all, Iron Man was there. We had to stand in line for a picture because Tanner was dying to see him.

The crash test dummies!

Although there wasn't much for her to do, Arina was pretty good the whole time!

Teaching the kids bike safety.

Tanners beloved Iron Man. We couldn't get Arina to look at the camera, she was intrigued by the big red man!
Tanner and Carter being firemen! They were so fast that they were just a blur!


Trying out the police motorcycles