Saturday, May 18, 2013

Jax continues to do well. A few minor things of course, that's bound to happen. His IV blew in just a few hours, and it left a nasty abscess on his arm. He had a rash from who knows what, so he got benedryl for that. Probably the biggest thing was they switched his seizure med, because they couldn't get topamax in IV form. They substituted it with phenobarb, which is not remotely related to topamax.  As a result from stopping the topamax so suddenly, he had seizures that we haven't seen in a long time! I was quite worried. Despite the fact that Jax was on pretty hefty doses of phenobarb for 5 years, he's been weaned off it for a year. So these big doses of phenobarb have totally snowed him! He wakes up for a few minutes, and then goes back out. He has basically slept completely through the last two days. Luckily neuro caught the boo boo and ordered the phenobarb stopped immediately! 

Surgery just came by and they want to hold off starting feeds for just a bit longer, so home hasn't been mentioned yet.


Darren said...

We're right there in that room with you, Lacey and Jax. From your biggest fans in Graceland.

Heidi said...

What a little fighter! He is amazing and I love his shirt! Rest up, sweet boy!

Becca said...

Ohhh, I just hate seeing him in the hospital again. :-( I'm so sorry, Lacey. Thinking about you guys, as always, hoping the trip home is sooner than later... (((hugs)))