Friday, February 3, 2012

Queen of destruction!

*To anonymous that just left the comment. I know what you mean! Even as the mom of two special needs children, sometimes I even offend people! Everyone is so different in what they see as mean. Even if someone said something to me that I didn't really like, unless it was blatantly mean, I just smile and ignore it! But I know what you are saying my friend!*

I think our princess has graduated from that title to queen! In all areas. We call her the queen of destruction, and also the queen of cuteness. This girl is a serious crack up! I really need to get that video camera charged!

See that smile? That's my, "I'm to cute to get in trouble for dumping all these extra supplies out on the floor!"

She love's my closet mirror in my bathroom. She thinks that cute girl staring back at her is such fun!
Who's got the bigger budha belly?

Oh, she's still looking at me!

We had Jaxson's cardiology appointment Wednesday. Man it was the longest day yet! Since she's never seen him, she wanted EVERYTHING! X-ray, echo, EKG, you name it! She was fantastic. But again, I searched for a good cardiologist, so I knew she would be great.
The best news, his echo looks the best it has in a long time! Still shows his VSD, his heart is still enlarged, but....drumroll please! His pressures are near normal!!
Not even kidding, moving to sea level has not only helped his saturations, but his overall heart function.
She did agree with me that its obvious that he still doesn't get good venous return to his heart, because his upper body is still puffy compared to his skinny legs. Also his EKG still show right ventricular hypertrophy, but that's expected in a kid with as many pressure problems as he's had. She didn't like when I told her how the slightest thing causes such heart failure, requiring IV heart medications to keep his heart pumping like it should and keep his blood pressure up. She doesn't want to wait 6 months to see him again, so we go back in 3 months. Overall I couldn't have asked for better news at this appointment!

I guess he's really chillaxin!!


Anonymous said...

I seriously don't know what I love more......that belly or that smile. Good to see Jax taking it easy after a long day :). What a cute little man.

stephanie said...

Boy she just never runs out of ideas!! lol

Love the good cardiology appt!
Adorable pic of Jax!!!

Becca said...

I just can't get over the pics of that beautiful, grown-up little girlie of yours!!!!

I'm so excited that the cardiology appointment went well!!! Hooray for fabulous doctors!

Chromosomally Enhanced said...

so glad to hear Jax is doing great! Cali sun and good stats! who could ask for more! Ariana is just to cute! love the belly and I am thinking when you think quiet you go running to see what is up! smiles

Alison said...

Great news!

Gorgeous photos too :)

April Vernon said...

So glad you got good news at the appointment. GREAT photos!

Zoey's Mom, Heather said...

Okay, your child cracks me up!! I so love a spunky one.

I am glad that things seem to falling into place with doctors for the little man. I know that it is such a relief to you guys.

you know, considering we couldn't wait to get you to California, we really should plan a playdate soon! We have a certain girls birthday coming up ... maybe at least then?

Anonymous said...

Thank you for your understanding. You are a good lady. Happy your move here has been good for your sweet son and the rest of your family.

Michelle said...

So good to hear that you are finally seeing some good doctors. I LOVE LOVE LOVE when they cross their legs like that. Lillian almost always crosses her legs in her sleep. It seems so grown up! AND---little miss... she definitely has the DIVA role covered! I can't believe she keeps those leg warmers on! So cute.

The VW's said...

Love those pics! Arina is such a little ham, and Jax just melts my heart with those legs of his crossed! Glad you found a great cardiologist for him, and his pressures are great! Hugs!

Meriah said...

Love that belly!!!

Lexi said...

They are adorable. I love the destruction. Abby's getting into everything, just like her brothers. Take that, "they're cute and sweet and good all of the time" stereotype. They're kids.

And yours are adorable. You constantly amaze me with your optimism and strength. I need to be more like you. (The sap is real...sorry)

Astrin Ymris said...

You DO realize that mammoth destructive mess-making is completely age appropriate for a two-year-old, don't you? ;-D