Kisses from a princess

You'll see I added a donation button to the side of our blog. I had someone ask me in the Q & A at the top of the blog, about a donation button for Jaxson's medical costs. It was clear back in January, when we found out that Jaxson would not be put on the waiver. As you know Jaxson's medical costs are outrageous! Every piece of equipment he uses is rented monthly. A couple items we now own, which I'm not sure if that's a good thing, since if it breaks, it is our responsibility to fix it! His formula alone is 1200 a month. Prescriptions I'm not sure of right now, since we recently found out non-generic meds went up considerably! And no inhaler or neb is generic.
I also recently found out that he was denied a medical bed. Of course I'm extremely frustrated at this. I especially love how the reason is "not medically necessary". How can it possibly not be medically necessary? The kid has every medical diagnosis there is! It makes me frustrated because I see kids that are basically healthy, with maybe a g-tube, that get this bed. It just always seems like my poor man falls through the cracks every time. Of course this bed is extremely expensive. I'm not even sure of the total cost yet, maybe because I'm too afraid to look!

I stole daddy's camera. I'm tired of not having a camera to capture my beauties! Arina is finally getting better, although she still has a nasty cough, and bears the scars of a constantly wiped nose, and tender grips on the face! The only one in the house that hasn't been affected yet is the most vulnerable, mister Jaxson. Although he woke up with goopy eyes, which is how Arina's started!

The princess is really into giving kisses lately. That is, if she's not busy watching Playhouse Disney.....

clapping wildly at Handy Manny! (yes, we finally got the girl to clap, another new skill!)

And of course, her Jaxson is her favorite one to kiss.

The poor kid is constantly covered in big, slobbery, kisses

Although I don't think he minds much, he loves having his sister to entertain him!

I mean, who wouldn't want slobbery, french kisses from this blue-eyed beauty!!