Monday, May 23, 2011

Kisses from a princess

You'll see I added a donation button to the side of our blog. I had someone ask me in the Q & A at the top of the blog, about a donation button for Jaxson's medical costs. It was clear back in January, when we found out that Jaxson would not be put on the waiver. As you know Jaxson's medical costs are outrageous! Every piece of equipment he uses is rented monthly. A couple items we now own, which I'm not sure if that's a good thing, since if it breaks, it is our responsibility to fix it! His formula alone is 1200 a month. Prescriptions I'm not sure of right now, since we recently found out non-generic meds went up considerably! And no inhaler or neb is generic.
I also recently found out that he was denied a medical bed. Of course I'm extremely frustrated at this. I especially love how the reason is "not medically necessary". How can it possibly not be medically necessary? The kid has every medical diagnosis there is! It makes me frustrated because I see kids that are basically healthy, with maybe a g-tube, that get this bed. It just always seems like my poor man falls through the cracks every time. Of course this bed is extremely expensive. I'm not even sure of the total cost yet, maybe because I'm too afraid to look!

I stole daddy's camera. I'm tired of not having a camera to capture my beauties! Arina is finally getting better, although she still has a nasty cough, and bears the scars of a constantly wiped nose, and tender grips on the face! The only one in the house that hasn't been affected yet is the most vulnerable, mister Jaxson. Although he woke up with goopy eyes, which is how Arina's started!

The princess is really into giving kisses lately. That is, if she's not busy watching Playhouse Disney.....

clapping wildly at Handy Manny! (yes, we finally got the girl to clap, another new skill!)

And of course, her Jaxson is her favorite one to kiss.

The poor kid is constantly covered in big, slobbery, kisses

Although I don't think he minds much, he loves having his sister to entertain him!

I mean, who wouldn't want slobbery, french kisses from this blue-eyed beauty!!

13 comments:

Patti said...

Oh my goodness, she IS a princess, I love her!!!

stephanie said...

Not medically necessary!!! You name he's got it, seriously!! My husband is choking on his cupcake as I read this to him! He said you should go to the news, and radio and papers with this disgrace. You've got news her Lacey!!! Someone would love to pick up a story about how another insurance company is screwing over a kid. in plain English! Not medically necessary my ass! That just gets me going.

And on a lighter note your Princess is scrumptious!!! Auntie is sending lots of kisses, slobbery ones just like the ones she gives!

To Love Endlessly said...

Not medically necessary, ugh...heard that crap before. Praying you are able to raise funds. I agree with Stephanie & her husband...go public.

And your prince & princess are GORGEOUS! Slobbery kisses are the best! :-)

Chromosomally Enhanced said...

I have been thinking of ya!! it has to be so stress being superwoman...your kiddos rock!! I am loving the pix...smiles

Angi said...

Love those little cuties!!

Scrappy quilter said...

She is so sweet. I love to see the pictures of the two of them together. Priceless. Hugs

Tiffany said...

Thanks for making me smile. I bet those 2 are tons of fun to watch. Sorry about the bed thing. I really don't understand how that can be the case. I'd like to know from the insurance company what type of child would then qualify to make it a medical necessity. Maybe you should take it to the news. Even if in the end it doesn't get you the bed at first, it at least might get the ball rolling. We will be looking at that for us in the next few years and I can't even imagine what that will me for us either. Good luck whatever you decide.

Colleen said...

What a little cutie, you can tell she LOVES her brother! I simply can't imagine Jax not qualifying for the bed, so frustrating!

Melissa said...

So sorry to hear that you are still fighting for Jax to get the equipment he needs. So frustrating!

I love all of Arina's kisses!!

Amy said...

I agree go to the media. Local - heck national. I love the last picture -- her face says mission accomplished!!!!

Zoey's mom said...

Gotta love these insurance companies,don't you?Mine wants more "justification" for Zoey's chair.Waste of everyones time.Makes me angry but something tells me this is on;y the beginning.

Bring that princess here.I want kisses.

The VW's said...

Love all the cute pictures! Oh, how I would love to get some of those princess kisses! :)

Libby said...

Just found your blog and fell in love! I am going to add you to my blog list so I can come back and check for updates! God Bless your sweet family!