Monday, December 21, 2009

Boys!!

Things have been so quiet I keep waiting for the ball to drop. We haven't had as much as a cold in our house in months, knock on wood. We got Jax longer trachs, and when we first changed it, he coughed and was super junky all night. I was quite worried that he wouldn't tolerate the length change, but the next morning he was fine. I guess its like getting a whole new trach because its irritating a part of the trachea that wasn't touched before. We are also adjusting his blood thinners because his levels have been high, but getting his hemo doc to call us back before Christmas is proving to be taxing. I'm also wondering how much his cecostomy is actually working. His surgeon didn't know if the cecostomy would do him any good, but we gave it a try. It seemed to at first, but I still have to give him suppositories to completely flush him out. Now that he has the trach he seems to swallow a lot more air. I vent his g-tube as much as I can but he still gets a lot of air into his gut, and since he can't even "toot" on his own, I'm giving him a suppository sometimes twice a day to relieve his distended belly. Plus, because the tube goes into the bowel, the area is always red and irritated. It sometimes even bleeds, if stool has leaked out. I'm debating if we should just pull it out and let it heal. I don't know if it has to be surgical or not, because if stool leaks into the abdomen that would be bad. We'll talk about it after the holidays. It would be one less tube to take care of!!

I love this pic. I don't know why, but its my new favorite.


The boys frosting cookies last night.



All done, the boys frosted a couple each, and I ended up doing the rest. Boys lose interest quite fast. And soon they were back to.........

what they are normally doing.



19 comments:

Team Carter Jay said...

So cute!!

Denise said...

Although I have been silent lately, I have been following every moment of your blog. I just haven't taken the time to write on hardly any blogs. You are on my mind constantly and I am always looking for an update on the baby girl. I keep thinking I will call. I just finished my Christmas cards minutes ago and now hope to finish wrapping. You just got me motivated to make my girls some homemade sugar cookies to frost. By the way, that is my new favorite picture of Jax too :)

My Three Sons said...

I love how the boys are wrestling and Jax is just sitting there chilling. That is cute.

I hope the bowel situation gets resolved quickly. I hate to hear that he is having problems with his tummy.

The cookies look yummy. Where are mine? LOL

Stephanie said...

Love the pics of the boys! Jaxson is looking soooooo much better. I wonder if using a Farrell valve with his feeding set up would help you out? That would allow you to leave him vented most of the time. E-mail me if you don't have the info on those. I can't remember if I sent that to you before or not. Christopher can't eat without one. Have a wonderful Christmas if I don't get to "talk" to you before. :)

Big hugs!

steph and Christopher

The VW's said...

Glad to hear that your family is staying healthy! I love that picture of Jax too! I also love that last picture of your boys wrestling! That scene looks very familiar to me at our house as well! Ha! I also love seeing Jax in the background of the last picture! He has his little foot kicking up and it is so cute! Great job on the cookies! HUGS!!!

Rochelle said...

So glad everybody is healthy and has lots of energy LOL. Keep it that way!

Rioux Family said...

I remember making cookies at Sonnie's house for just about every holiday, I miss it lol. Oh by the way...Matt has a cold =O and he might give it to me...but the boys just want my dog don't they! haha ;)

Corinne Judy Smith said...

I love the sugar cookie making day. We'll be doing ours tomorrow and you are so correct about the boys loosing interest quickly.
I asked about the private home study because we might end up getting one next year. We'll see after the holidays... such an emotional rollercoaster ride we have been on for the past few weeks.

Alicia said...

Very sweet picture of Jax, my new favorite too!

I grew up with three brothers and there are sometimes that I miss the craziness that comes with all that boy stuff. Only sometimes though! ; ) Looks like you are going to have a houseful of fun for Christmas!

Blessings!

mom26kids said...

Hey! I haven't been to your blog for along time! I saw your post about wanting to adopt. if they don't find a home for one of them please let me know we have a home study and we are licensed professional foster parents.

mom26kids said...

oh hey I don't have a bog anymore so email me at mom2mariah@gmail.com
thanks angie

ParkerMama said...

Yum.

Kim said...

Yummy cookies! I hope all is going well your way. I have been so busy, but I've been thinking and praying for your little guy. Hope you have a wonderful Christmas!

Cammie Heflin said...

I agree, that is a favorite pic of mine too!

Emily said...

Love his picture... super cute! I should make some cookies for my girls to frost!

stephanie said...

Love the pics! I really love the pic with the boys and all the frosted cookies! They look like "angels"!!

Kristin said...

Super cute. Merry Christmas!

sturpin said...

Sounds like a fun night! Bella has a problem with constipation. It's always something, huh? :) One of my nurses loves to give her Miralax - usually as he is walking out the door. He leaves the fun for the rest of us to clean up. :)
I love that picture of Jax. He looks so good.

Tina said...

I can sure understand why thats your new favourite picture of Jax, man that boy seems to get cuter all the time! He has the most beautiful, peaceful face. And the other boys I know what you mean, I got my son to help me make the shape of the cookies, well actually he was pestering me that he wanted to make them, a lot of enthusiasm in the beginning and well after a few then off he went to something less delicate....I guess that's just boys for you!