Home study

Jaxson trying out his new babylegs!



My little frog boy!

Tomorrow we are having our home study! So today will be spent running to get my birth certificate, two fire extinquishers, and frantically cleaning the house. To top it off, we got a ton of snow last night, and its still snowing! Oh how I want out of Utah, I'm tired of yucky snow. So my guess is that my nurse will call and say he can't make it through the snow, Ugh, I really need him today!

I know I have no reason to be nervous, but man I am. I had a few minutes of calm in bed last night, thinking that the lady will love us. I don't know how quick it will go after that. I want to get the home study faxed to the case worker now! I want to find out if they will give us this baby girl. Oh the wait is maddening! I can tell you what little I know of the baby, and this is from before Christmas. She was a 24 week preemie, twin. She supposidly doesn't have all of her brain, but she eats by mouth, tracks and prefers certain people, and makes baby babble. Oh and reaches for toys. All this at an adjusted age of 5 weeks! She was 5 months before Christmas, and only weighed 7 lbs. I was also told that her fontanel has already closed so her skull won't grow with her body. But I know that can be surgically fixed. She also has cerebral palsy. I just want to get my hands on her and her medical records. The case workers have no medical background and just don't know what their saying. Hopefully we can meet her next week! So just pray that we stay calm and don't say anything stupid tomorrow!

Also, I talked to my ped about the ok sleep study and the fact that he still wakes up so much. She wants me to take him back to his rehab doctor. She said that sometimes brain injury kids don't sleep great, spasms or other things, and this doctor might have some good things to try. Also I wanted to look into getting his cecostomy out. We didn't know if it would work in the first place, but with the trach and all the air that he swallows, I haven't even used it. And since stool can leak out its always red and irritated. But they just told me it has to be surgically removed. Ugh, I didn't know that. Didn't I say in my New Years resolution that I wanted less surgeries this year? And its only January! We'll make an appointment with the surgeon and discuss what would be best!