Yesterday I noticed this rash on Jax. Red splotches at first in his creases. His wrists, elbows, shoulders. Also on his neck and ears. It would go away and then come back. It looks like hives, but I can't think of anything new he's getting that he would be reacting to. They started two new meds last week but both have been meds he's been on before. Today I noticed it again all over his arms and legs, and this time it looked like welts. So I called the ped and she told me to come right in before it went away again. She said its definitely an allergic reaction. She talked to cardiology who thinks it may be the enalipril. He was on it before but may have built up an immunity to it and now his body is fighting it. So we stop it for a week and see if the hives go away.And man you should see the bruise on my arm from were blood was taken. One nurse tried twice to no avail, so she called another nurse. This nurse got it but she jammed the needle in hard. I swear she hit nerves and muscles. My arm was dead when I left and to this day is soo sore with a monsterous bruise. Now I know how my poor baby feels on a regular basis.
Also as of right now we are still scheduled for the 29th. They have nothing available earlier, and god forbid they ask someone who is just scheduled for a T&A or something to push back a couple of weeks for a baby who is in heart failure and has pressures through the roof. We won't even go there again. So it looks like we'll be spending Halloween in the big house. I believe this will be our first halloween locked up. Last year he was discharged a day before Halloween after a 22 day stay because I wanted out. Also two Christmas's ago I took him home at 11 at night Christmas Eve while daddy played Santa. There are sometimes when I know I can watch him just fine at home so I'm not making his brothers suffer on the holidays. We've spent our fair share of holidays in the hospital. Fireworks really do look great from the 3rd floor balcony!
Oh that's to bad about the rash. Hopefully it calms down. I see that you will be in the hospital on the 29th. I maybe in there with ya for gtube/ear tubes. Nothing as major as what you are going through.I know how you feel a little bit as I spent my first xmas with Wysdom in the hospital. I felt bad for my little girl. I was hoping to be out for Halloween too. I will be praying that everything goes well and that maybe they could move it up for you. Hang in there. Big {{hugs}} to you
ReplyDeleteI hope the rash settles down.
ReplyDeleteI've checked Ashlea out of hospital myself too - sometimes we mums just do know what is best!
Poor little guy. Sometimes those types of rashes itch and even hurt. I hope he handled it okay. I also hope he's getting over it.
ReplyDeleteCarly has T21. I know they say it's not genetic, but man ~ with the family history, it sure makes me wonder.
With all of Carly's hospital stays, we only spent one holiday inpatient. It was Easter. I remember being so depressed about it. Although, I also knew it was the best place for Carly to be at that time.
We'll be praying for you as always, but extra hard praying on the 29th.
Poor little man! I pray that his rash goes away soon! That can be scary! Leave it up to Jax to find something to keep his Momma on her toes! :)
ReplyDeleteSorry that they couldn't get him in sooner for the trach! I'll be praying!
Cute picture of Jax with the footbal! Maybe Carter thought Jax looked bored and wanted to play some catch?! What a nice big brother to share!
Hang in there! If you have any questions about a trach please ask! I know he'll do great and you will too. Thinking of you. :)
ReplyDeleteOh man Lacey! Never a dull moment in your house! Poor little guy! I hope he is on the mend soon.
ReplyDeletePoor baby... that's one more thing he didn't need. Hopefully the rash clears soon.
ReplyDeleteWe spent last Halloween in the hospital...I suppose it's warmer than being out and about...Hopefully you'll see your fair share of costumed medical professionals...and copious amounts of chocolate...actually, they should look into making that standard procedure...
ReplyDeleteHang in there girlfriend. Sending you lots of hugs and prayers.
ReplyDeleteAnd I keep seeing those blankies of yours! Gorgeous!
Just what Jax needed a rash, And poor you too, that reallly hurts when they can't get the vein right away. Hand in there we're all praying for all of you!!!
ReplyDeleteMine got what I called "mystery hives." A twenty-dollar co-pay later I was assured that he would be fine. I still have no idea how he got them.
ReplyDeleteI have spent a fourth in the hospital but never a Halloween (knock on wood). I bet the nurses are a lot of fun then.
wow, what are they changing the enalapril to? (Yet another med Bella is also on) :)
ReplyDeleteSorry about your arm.
the 29th? I am sorry about the wait. TO make such a big decision and then have to wait and wait. Torture.
Hugs and thoughts across the miles!
Yep - we've been there and done that...
ReplyDeleteholidays in the hospital that is!
Praying for a wonderful nursing staff that will make it a party anyway!
LOVE the football picture...such a BOY!