First, let me say what happened at the surgeons office. He pulled off the dressing that held the tube in place. Like you saw, it was soiled with stool. He walked down and talked to the radiologist to see if we could just put the button in. We could put a new dressing down, but it would be soiled again in a day, so 5 more weeks of that would get old. The radiologist was hesitant, if it hasn't healed to the skin, stool could leak into the abdomen and then we are talking sepsis and emergency surgery. Our surgeon didn't think it was likely, so we went ahead and put the button in. We have to watch him for fevers and other signs of infection in the next few days. I will show you tomorrow the button, and what we do to flush it, its quite interesting. I've never seen this before and I'm sure you haven't either.
But first I have to give a big thanks to my blog world friends. I feel like I've been friends with most of you for life. I few I've met, and one day I'm going to buy an RV and travel the country visiting all of our friends. So thank you for your words of encouragement, and especially your prayers.
Thanks to
Lily and her mom for dinner. And to our friend Barb for dinner. And thanks to
Carter's mom for dinner tonight. And thanks ahead of time to
Emily and
Tausha, who are coming over on Tuesday.
Thanks to
Michelle, who always offers to help, and is letting us come up to her house to visit to get away and let the boys run. Thanks to
Melissa, who also always has kind words, and I can tell, even through the computer, that you have a spunky spirit. Thanks to
Shelly, who had dinner sent to us from a whole other state, I told my friend about that in the store, and she cried. Thanks to
Phenny and his mommy, who give me my fix of those big blue eyes and curly hair.Thanks to
Alicia, who's Gavin has the same brain injury as Jax, and we have so much in common its scary. How I want to get to Michigan some day to meet you and Gavin, who is Jax soul brother. And finally, thanks to
Heather, who I actually got to meet her and sweet Zoey. Hopefully someday we will be neighbors, and I love your family and especially you so much. If I forgot someone I'm so sorry, everyone has been so great.
As I tried flushing this tube for the first time. It was scary, I was basically winging it. No one really has a lot of experience with these, so its frustrating not knowing. He still has so much pain around that site. So I'm messing with the tube and he is screaming. And then when I finish that I stick him in the leg to give him his shot he gets twice a day. Why do I do this stuff to my baby? Does he really deserve it? Maybe I should have let him go when he had the brain injury, or in January 07 when he went into status and we almost lost him then. How do I know when its the right time? Sometimes I wonder if everything he needs done is all worth it to him. He's so small and so fragile. I just felt bad tonight when I had to poke my baby that was already upset, it makes me sad..