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Friday, January 23, 2009

This little piggy

Well we are back on continous feeds. He is not tolerating his feeds so we are starting over. Its always baby steps. We are also going to have an upper GI on Tuesday to see if his nisson is still intack. While we are up there Tuesday we also see the ENT to see what surgery they will do for his airway. So we prepare for surgery. That means getting a PICU bed, and all that great stuff.

His pulmonolgist also ordered an overnight oximetry for two nights. Its basically a sleep study you can do at home. Yeah, I love her for not making us come back in. She just wants to make sure he is keeping his sats up on his 1 liter he is on at night. If they don't stay up they will probably try and get c-pap. And also we still have the monster concentrator, but they did bring us a new one that is a lot quieter, so for now we are ok, but I feel naked without my M tanks. I have had it for 3 years now.
His cute little piggys with moniters on both feet. Just ignore the purple. He has horrible circulation

Hanging out with his big brothers.
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9 comments:

  1. My Three SonsJanuary 23, 2009 at 6:12 PM

    I'm hoping all goes well on your upcoming appointments.

    I love the picture with all the kids. They look so cute.

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  2. My name is SarahJanuary 23, 2009 at 6:27 PM

    What great brothers.

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  3. JuniorJanuary 23, 2009 at 7:20 PM

    Good luck with the tests.
    Jaxson you look very happy hanging out with your brothers.

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  4. MaureenJanuary 23, 2009 at 7:39 PM

    I love the brothers all together. So cute! I hope everything goes well at the hospital.

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  5. Cammie HeflinJanuary 23, 2009 at 9:00 PM

    Addy does the home sleep studies too, I hope he is keeping those sats up, he is so precious.

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  6. The VW'sJanuary 24, 2009 at 9:18 AM

    I hope the appointmets go well and that his nissen is still intact! Sorry to hear that he had to go back on continuous feeds. Gavin doesn't tolerate bollus feeds either. He is on his pump 16 hours per every 24 hour period. It's a pain, but at least he's off of it 8 hours a day.

    I just love staring at Jaxson! He is too darn cute!!! Hope you have a great weekend!

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  7. HeatherJanuary 24, 2009 at 11:03 AM

    Sweet pictures of Mr.Jaxson and his little girlfriend has some piggies that look similar in some moments!Sorry life continues to keep you hopping.Mostly sorry Jaxson must go through more "stuff".Zoey has a Nissen as well and she DEFINITELY has broken through it.As evident by her spitting up!Depending when he got his,Zoey had her's done at 7weeks,they say the younger the surgery the more likely they can break through.Not always but possible.Hoping that's not the case.Aren't g-tubes fun?In our case it sure has come in handy with our latest deal.Not eating would have brought a whole bunch of other issues that we would not be needing right now.Thanks for the emails and I can't wait for the package.

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  8. Tara BennettJanuary 25, 2009 at 1:02 AM

    Cutest brother picture ever.

    Best wishes with your appointments. I hope they get everything figured out for sweet Jax!

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  9. MelissaJanuary 27, 2009 at 2:00 PM

    So cute, I just LOVE the hair;) Jax, you have the same haircut as my Dillon!
    Praying for you little man!

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