Jaxsons Fight

Its been a busy weekend. Only two weeks before daddy starts working in California and I become a single mom for a few months! The IRS finally says they've received our return, so we are just hoping it comes this Friday or next Friday so we can drive daddy down to Cali and go to the big birthday bash!
Jaxson has been having more seizures the last couple weeks. What worries me is these aren't just quick startle seizures or his eye seizures. These are seizures that last a minute or longer. These are the seizures that we had a hard time controlling and eventually led to status. So Thursday we have an EEG and the following Monday an appointment with neuro. We need to get these controlled, if he goes into status again, there will be nothing that we can do. A pentabarb coma is out of the question as it almost took his life last time! He has also been super junky the last couple of days, but it has yet to turn into a respiratory virus. Sometimes I just wish he wasn't so complicated, that things could just be straight forward!
Friday was a beautiful day, and the boys didn't have school, so they were outside enjoying the sunshine. It was still too cool for the babies, but they didn't mind!


The babies are happy just staying inside and lovin on each other!



Saturday we had a fun Hopekids event. We had Hollywood connection all to ourselves. Rides, laser tag, and miniature golf.
I took Jaxson on the Merry go round, and I'm finding it more difficult to do these things with him as he gets bigger. Maybe if I would have rode on the horse behind him it would have been easier. He arches his back when you hold him upright, and he was trying to look at the lights. My arm was burning trying to hold him straight, as he's going up and down. Plus I had the oxygen tank on that arm. I should have put that on the floor! I only hope we can continue to include him in as much as we can when he gets bigger and harder to carry.


My Jonah was there, a treat for me as he is my favorite little boyfriend!


The boys LOVE miniature golf. They are so funny, they have no idea how to play right, but who cares, as long as they are having fun!


Jonah has the idea, just put the ball in with your hands! Duh people!

I tried to take Arina on the Merry go round. She was not having it! She enjoyed Disneyland so much, it surprised me that she was scared. I'm not sure if its because she was so stoic and quiet when we went to Disneyland, and now she has a personality, and an attitude to match!
She'd rather stay in mommy's arms and watch the horse move.

I would try to get her on and she would just dive back into my arms! Little stinker!

Tomorrow we take all 5 kids to the dentist at the same time. Wish me luck with that one!