Last night was very long and restless, but I guess thats not new from the last few days. He got up to 5 liters of oxygen, which is as high as our concentrator goes. And that only kept him in the high 80's. I turned up the air too just to see if higher flow would help. This morning he's back down to between 1 and 2 liters. We head back in to our ped today to check a gas, and other things.
I'm not quite sure when to head to the hospital. This is our first illness with the trach. I know I can't transport him to the hospital on 5 liters, I have nothing that will go that high. Although our local fire department knows him quite well, and I know they'd love to help us out! And heck, they haven't seen this house, they might want to check it out!
Thank you dear friends for your prayers and kind words, I feel like we are wrapped in a giant hug! (man was that a cheesy line or what?!)
Cheesy or not ... so true.Hoping that you can stay put.Anxious to see what the pediatrician thinks.More prayers coming today.
ReplyDeleteI love cheese! ; )
ReplyDeleteThanks for the update. Bummed that he needs that much O2, that's rough! I am glad your fire department knows you guys well. Praying like a mad woman here!
Lacey, that is horrible. I hope you can make it through this illness without having to make a trip to the hospital. Here's to hoping you makes a quick recovery. Your poor little guy.
ReplyDeleteGlad for the update. Will keep praying and hopefully you don't have to go to the hospital.
ReplyDeleteOh more big cheesy hugs for you and Jax and everyone Lacey- I wanted to cry when I read that. Abby was in the hospital with RSV in December- I can't imagine a sister of RSV is much better- much love and hugs
ReplyDeleteIt makes me so sad to see your handsome little boy so sick. Praying for strength and healing.
ReplyDeleteI hope Jax is feeling better soon.
ReplyDeleteThanks for the update. I can't believe how high his O2 is. I've said this before and I'll say it a million times more. You are the only person in this world who could ever be the mother to Jax. You simply amaze me. So right back at ya with the chessy line.
ReplyDeleteSending prayers and hugs!! and more cheese. Love you!!
Oh Lacey, I'm just catching up! I'm thinking of you guys and hope that he gets through the worst of it quickly and you can settle back into your routine. Great big giant cheesy hugs coming your way!!!! Hug the little man too :)
ReplyDeleteOh Lacey! I want to pray for you guys right now. Father God, I ask right now for a special touch from you. Lord I just ask that you touch Jaxson and pray that you heal his body Lord. Give Lacey and her family a peace about this situation to know that everything is going to be ok. We ask this in Jesus name. Amen. Lacey, I will continue to pray that all goes well. Take care and here is another cheesy hug for you! (((HUGS)))
ReplyDeleteMore prayers for Jax continue...waiting eagerly to hear the news from today and hoping and praying it doesn't need a hospital stay, but whatever helps him get ok faster I guess. Here's a giant hug back at you and Jax.
ReplyDeleteSending loads of positive energy his way
Praying Lacey!
ReplyDeleteContinuing to say prayers for Jax!!
ReplyDeleteI feel so sad when Jax is ill! I'm thinking of and praying for you guys often! Keep fighting Jaxson! Love, Hugs and Prayers!!!
ReplyDeletePraying for Jax to feel better soon and to be able t stay ouuta the hospital. We Love you Jax!
ReplyDeleteHey Woman, is Jax on a vent at night or anything? That vent makes all the difference for Parker when he is sick.
ReplyDeleteAnd tell them you need a concentrator that goes higher! argh!
Sending lots of hugs and healing vibes!
Hope Jax had a better night last night...and staying out of the hospital:)
ReplyDeleteStill praying here too!
ReplyDeleteThinking of you & PRAYING that Jax is doing ok!! Waiting very patiently for an update! PLEASE let us know when you get a chance...Getting worried!
ReplyDelete{{HUGS}} & MANY Prayers as always~! xoxo